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#hpm - Healthcare Social Media Transcript

#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Jun 27 18:00:00 PDT 2012 Wed Jun 27 19:15:00 PDT 2012 change time period

New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags Learn more about #hpm at The Healthcare Hashtag Project

jfclearywisc

Jim Cleary, Dir PPSG (@painpolicy) & @uwhealth Palliative care MD, joining #hpm tweetchat for the next hour tonight.
Wed Jun 27 18:00:16 PDT 2012

ctsinclair

Welcome to #hospice and #palliative medicine tweetchat. Twitter's longest running medical specialty chat. Please introduce yourself! #HPM
Wed Jun 27 18:00:33 PDT 2012

donaldhtaylorjr

I will participate in hospice & palliative medicine "tweetchat" #hpm from 9-10pm http://t.co/rl2e0fa8 interesting group; join in
Wed Jun 27 18:01:04 PDT 2012

ctsinclair

Attention followers, my next hour will be full of posts on hospice and palliative care topics. Would love for you to join in! #HPM
Wed Jun 27 18:01:29 PDT 2012

ctsinclair

For an explanation of How/Why to do #HPM tweetchat check out this great slide deck from @rfberry and @goBeMoRe http://t.co/W0YLljhw
Wed Jun 27 18:02:26 PDT 2012

rfberry

Renee Berry, early #palliative care advocate from Menlo Park, CA, working @goBeMoRe (currently on vacation in Hawaii) #hpm
Wed Jun 27 18:02:30 PDT 2012

aliciabloom

MSW, LSW practicing in #hpm. passionate about improving patient/family access through empowerment & clinical education.
Wed Jun 27 18:02:31 PDT 2012

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aliciabloom

RT @ctsinclair: For an explanation of How/Why to do #HPM tweetchat check out this great slide deck from @rfberry and @goBeMoRe http://t ...
Wed Jun 27 18:02:43 PDT 2012

ctsinclair

@donaldhtaylorjr I'm so glad you are here tonight as we will be talking a little health policy and ACA #HPM
Wed Jun 27 18:02:50 PDT 2012

aliciabloom

here comes the flood! for the next hour, i'll be tweeting as part of #hpm chat on topics related to #hospice & #palliative care (join us!)
Wed Jun 27 18:03:34 PDT 2012

ctsinclair

A few more minutes for intros and pleasantries and then we'll get down to the topics: Choose Wisely, ACA and politics, and more #HPM
Wed Jun 27 18:05:08 PDT 2012

hollyby

Hello! Holly Yang here, #hospice and #palliative medicine doc. Not able to join for most of it, so will lurk. Hugs to you all! #hpm
Wed Jun 27 18:05:47 PDT 2012

ctsinclair

@aliciabloom I need to pick some dates to host in the next month or two. I have two multimedia ideas to run by you #HPM
Wed Jun 27 18:06:02 PDT 2012

rfberry

@ctsinclair @aliciabloom sounds exciting #hpm

Wed Jun 27 18:07:02 PDT 2012

aliciabloom

@ctsinclair sounds great! let me know what works for you. #hpm
Wed Jun 27 18:07:24 PDT 2012

_lizzy_

Hi I'm Lizzy, MSW, LSW, thanatologist and hospice volunteer from Columbus Ohio. Passionate about #hpm
Wed Jun 27 18:08:26 PDT 2012

ctsinclair

Topic 1: It is an election year, ACA is under the microscope, Can we expect end of life issues to be an election year issue? (part 1) #HPM
Wed Jun 27 18:08:38 PDT 2012

donaldhtaylorjr

Don Taylor Prof of Public Policy at Duke #hpm

Wed Jun 27 18:08:57 PDT 2012

RannPatterson

RT @nursefriendly: Wednesday #Healthcare #Tweetchats (EDT): 830p (#s4pm & #mHealth Joint chat) (9p #dsma #hcsmca #hpm #premeded) - # ...
Wed Jun 27 18:08:58 PDT 2012

Kamiyamay

Think open-minded...#hpm for an hour

Wed Jun 27 18:08:59 PDT 2012

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ctsinclair

Topic 1b) and if so what are we as the HPM tweetchatters prepared to do about it? #HPM
Wed Jun 27 18:09:16 PDT 2012

jfclearywisc

@ctsinclair: T1: It is an election year, ACA under the microscope, end of life, an election year issue? (part 1) #HPM No seen as rationing
Wed Jun 27 18:09:48 PDT 2012

ctsinclair

ACA = affordable care act for those not familiar with the abbreviation #HPM
Wed Jun 27 18:09:57 PDT 2012

donaldhtaylorjr

RT @ctsinclair: Topic 1: election year, ACA under the microscope, Can we expect end of life issues to be an election yr issue? (part 1) #hpm
Wed Jun 27 18:10:06 PDT 2012

jfclearywisc

@ctsinclair T1: US Hospice is in fact universal health care with rationing for those who are dying #HPM
Wed Jun 27 18:10:52 PDT 2012

donaldhtaylorjr

eol issues will be issue; not in a positive way; cultural fear of death enables scare politics of rationing as dirty word #hpm
Wed Jun 27 18:11:54 PDT 2012

jfclearywisc

@ctsinclair T1b. #HPM soc media needs to try to shift focus to "appropriate" care.
Wed Jun 27 18:11:56 PDT 2012

Kamiyamay

RT @jfclearywisc: @ctsinclair T1: US Hospice is in fact universal health care with rationing for those who are dying #HPM
Wed Jun 27 18:11:56 PDT 2012

aliciabloom

healthcare reform & ACA will certainly get a lot of attention on the campaign trail. hard to imagine EoL care & issues won't come up. #hpm
Wed Jun 27 18:11:58 PDT 2012

rfberry

RT @ctsinclair: Topic 1b) and if so what are we as the HPM tweetchatters prepared to do about it? #HPM
Wed Jun 27 18:12:15 PDT 2012

ctsinclair

ACA brought face to face mandated visits by MD/NP to hospice orgs, if #SCOTUS brings down ACA, wonder if F2F will change? #HPM
Wed Jun 27 18:12:41 PDT 2012

rfberry

@jfclearywisc shift focus from what? #hpm

Wed Jun 27 18:12:59 PDT 2012

ctsinclair

RT @jfclearywisc @ T1b. #HPM soc media needs to try to shift focus to "appropriate" care. "I like the term aligned" #HPM
Wed Jun 27 18:13:07 PDT 2012

T1 - this is a question for the MDs. If ins companies have to remove $ limit, would they
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_lizzy_

have a way to pressure MDs to ration hc? #hpm

Wed Jun 27 18:13:08 PDT 2012

Kamiyamay

@jfclearywisc @ctsinclair Agreed the word "Hospice" carries a dark picture in people's minds #hpm
Wed Jun 27 18:13:14 PDT 2012

ctsinclair

@donaldhtaylorjr EOL issues will come into play, especially if both candidates have to offer health care reform ideas in election #HPM
Wed Jun 27 18:14:00 PDT 2012

Kamiyamay

#hpm "America's best hidden secret"

Wed Jun 27 18:14:17 PDT 2012

aliciabloom

easy for those opposed to reform to make important discussion re: appropriate, patient centered care turn into rationing & death panels #hpm
Wed Jun 27 18:14:26 PDT 2012

jfclearywisc

@rfberry T1b shift focus from "giving up" "not fighting" "treat at all costs" to "appropriate" "rational" care #hpm
Wed Jun 27 18:14:46 PDT 2012

ctsinclair

@donaldhtaylorjr I need to start working on a slide deck about the difference between rationing and patient centered decision making #HPM
Wed Jun 27 18:14:58 PDT 2012

ctsinclair

Has anyone in this group thought of building relationships with mainstream media journalists now, so you might be a goto source later? #HPM
Wed Jun 27 18:15:52 PDT 2012

ctsinclair

We already know the classic arguments against hospice and palliative care, should we start compiling well researched counter arguments? #HPM
Wed Jun 27 18:16:43 PDT 2012

rfberry

T1 As a community we can have clear talking points to shift conversations swirling around misinformation #hpm
Wed Jun 27 18:16:47 PDT 2012

jfclearywisc

MT @donaldhtaylorjr: eol will be negative issue in Nov; cultural fear of death enables scare politics of "rationing" a dirty word #hpm
Wed Jun 27 18:16:54 PDT 2012

aliciabloom

huge opportunity to correct misconceptions about #hospice & #palliative care and show people how it improves quality & outcomes #hpm
Wed Jun 27 18:17:18 PDT 2012

donaldhtaylorjr

I have linked w journos via blog. ex posts like this on lineage of #IPAB http://t.co/7JMurkLK @joannekennen journo w #hpm cred #hpm
Wed Jun 27 18:18:13 PDT 2012

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jfclearywisc

@ctsinclair I try to have lunch with TV news editor every 3-6 months. Interact with many journalists by Twitter! #HPM
Wed Jun 27 18:18:21 PDT 2012

_lizzy_

@rfberry @ctsinclair It would be nice to have talking points. I have 2 media interviews next week about death awareness. #hpm
Wed Jun 27 18:18:22 PDT 2012

ctsinclair

@Kamiyamay RE: Hospice being a dark picture. When communicated wrong it feels like a horror movie; done right - a love story #HPM
Wed Jun 27 18:18:37 PDT 2012

rfberry

T1 @IraByock's http://t.co/KWLynkGU has great resources for engaging policy makers #hpm
Wed Jun 27 18:18:50 PDT 2012

Kamiyamay

T1-may not be top issue from the eyes of state but becoming much more talked about out in the communities..someone is getting word out #hpm
Wed Jun 27 18:18:58 PDT 2012

ctsinclair

RT @jfclearywisc: @ctsinclair I try to have lunch with TV news editor every 3-6 months. Interact with many journalists by Twitter! #HPM
Wed Jun 27 18:18:58 PDT 2012

aliciabloom

@ctsinclair yes. we have evidence based support re: #hospice & #palliative care improving QoL + patient outcomes w/ incidental $ saving #hpm
Wed Jun 27 18:19:13 PDT 2012

donaldhtaylorjr

Two levels of engagement on #eol: (1) addressing lies (2) helping people/families understand their options #hpm
Wed Jun 27 18:19:21 PDT 2012

_lizzy_

@ctsinclair I always try to blast social media when there are misconceptions, such as the J&J commercial that is still running #hpm
Wed Jun 27 18:19:28 PDT 2012

ctsinclair

@jfclearywisc I need to polish up my journalist list for sure and start making conversations with them now. Locally & Nationally #HPM
Wed Jun 27 18:19:28 PDT 2012

ctsinclair

RT @rfberry: T1 @IraByocks http://t.co/4GZ3NBFs has great resources for engaging policy makers #HPM
Wed Jun 27 18:19:41 PDT 2012

aliciabloom

@_lizzy_ @ctsinclair we should consider talking about the J&J #hospice RN commercial in a future chat #hpm
Wed Jun 27 18:20:14 PDT 2012

ctsinclair

@_lizzy_ See last tweet by @rfberry on Ira Byock. Great resources! #HPM
Wed Jun 27 18:20:15 PDT 2012

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jfclearywisc

@ctsinclair Perhaps we could invite some journos to join an #HPM chat to discuss interactions with media #hpmglobal
Wed Jun 27 18:20:57 PDT 2012

ctsinclair

RT @aliciabloom: huge opportunity to correct misconceptions abt #hospice & #palliative care; show how it improves quality/outcomes #HPM
Wed Jun 27 18:20:57 PDT 2012

donaldhtaylorjr

Medicare hospice benefit needs to be updated/modernized; politics make impossible right now #hpm
Wed Jun 27 18:20:58 PDT 2012

Kamiyamay

@ctsinclair Agree but many times arriving on scene people very angry at the word..usually end with...we wish we had known earlier...#hpm
Wed Jun 27 18:21:06 PDT 2012

ctsinclair

@aliciabloom Yes I know nothing about the J&J hospice nurse commercial! #HPM
Wed Jun 27 18:21:16 PDT 2012

ctsinclair

RT @donaldhtaylorjr: Two levels of engagement on #eol: (1) addressing lies (2) helping people/families understand their options #HPM
Wed Jun 27 18:21:24 PDT 2012

_lizzy_

@ctsinclair @rfberry Funny I was just looking at it and I was thinking how awesome it was. Thanks! #hpm
Wed Jun 27 18:21:26 PDT 2012

rfberry

@ctsinclair I have a healthcare journalist list, heck it out #hpm

Wed Jun 27 18:21:51 PDT 2012

ctsinclair

RT @rfberry: T1 As a community we can have clear talking points to shift conversations swirling around misinformation #HPM
Wed Jun 27 18:21:54 PDT 2012

jfclearywisc

Industry defensive too RT @donaldhtaylorjr: Medicare hospice benefit needs to be updated/modernized; politics make impossible right now #hpm
Wed Jun 27 18:21:56 PDT 2012

rfberry

RT @aliciabloom: @_lizzy_ @ctsinclair we should consider talking about the J&J #hospice RN commercial in a future chat #hpm
Wed Jun 27 18:22:07 PDT 2012

ctsinclair

@donaldhtaylorjr do you think MEDPAC is a decent approach to distance good reform from politics? #HPM
Wed Jun 27 18:22:27 PDT 2012

rfberry

@aliciabloom @_lizzy_ @ctsinclair when I saw that, I ran into the TV room, was so excited! #hpm
Wed Jun 27 18:22:48 PDT 2012

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Kamiyamay

@ctsinclair @donaldhtaylorjr . also winning their trust. First visit is important. They need truth, someone to look in eyes, compassion #hpm
Wed Jun 27 18:23:19 PDT 2012

rfberry

@_lizzy_ I haven't seem it for a while, what misconceptions are in it ? #hpm

Wed Jun 27 18:23:34 PDT 2012

aliciabloom

definite topic for future chat! RT @rfberry: @aliciabloom @_lizzy_ @ctsinclair when I saw that, I ran into the TV room, was so excited! #hpm
Wed Jun 27 18:23:38 PDT 2012

ravipm2000

@jfclearywisc FYI. http://t.co/7lMyOknw #hpm

Wed Jun 27 18:23:42 PDT 2012

ctsinclair

Side question: would this community like talking points and a good reference list? Maybe host on @Pallimed & @goBeMore? #HPM
Wed Jun 27 18:23:46 PDT 2012

rfberry

RT @donaldhtaylorjr: Two levels of engagement on #eol: (1) addressing lies (2) helping people/families understand their options #hpm
Wed Jun 27 18:23:47 PDT 2012

jfclearywisc

J&J nursing commercail RT @ravipm2000: @jfclearywisc FYI. http://t.co/Gw4XNcnF #hpm

Wed Jun 27 18:24:16 PDT 2012

ctsinclair

@rfberry: @aliciabloom @_lizzy_ I have no clue about this commercial you are talking about! Is this it? http://t.co/Y89IVyKP #HPM
Wed Jun 27 18:24:48 PDT 2012

ravipm2000

@ctsinclair FYI http://t.co/7lMyOknw #hpm

Wed Jun 27 18:24:49 PDT 2012

donaldhtaylorjr

MEDPAC has solid recs; ex u shape per diem $ & noting long & short stays in hospice as problem is good; their recs often later taken #hpm
Wed Jun 27 18:24:59 PDT 2012

ctsinclair

Thanks @jfclearywisc @Ravipm2000 So glad to have the link #HPM

Wed Jun 27 18:25:29 PDT 2012

aliciabloom

@ctsinclair i think it would be great resource. we're a committed group of people, it would be nice to have some consistent messaging. #hpm
Wed Jun 27 18:26:12 PDT 2012

JoanneKenen

@donaldhtaylorjr @joannekennen #IPAB #hpm thank don! (But spelled @JoanneKenen )

Wed Jun 27 18:26:32 PDT 2012

ctsinclair

Getting ready for topic 2, so close out your thoughts on what we as a community could do to prepare for EOL issues in upcoming election #HPM
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Wed Jun 27 18:26:37 PDT 2012

donaldhtaylorjr

CMS and many congressional staffers obsessed with long stays; worried about back door LTC benefit. Need to focus on short & long stays #hpm
Wed Jun 27 18:26:57 PDT 2012

_lizzy_

@ctsinclair Yes that's it. It bothers me because it implies the nurse is not accepting of pt. dying that night... #hpm
Wed Jun 27 18:27:00 PDT 2012

aliciabloom

J&J #hospice RN commercial will be topic at our next chat in July #ipromise #hpm
Wed Jun 27 18:27:09 PDT 2012

ctsinclair

@JoanneKenen Now here is one reporter I love talking to! #HPM

Wed Jun 27 18:27:25 PDT 2012

aliciabloom

consistent messaging that responds to negativity with positivity & reframing will be essential for #hospice & #palliative care #hpm
Wed Jun 27 18:28:03 PDT 2012

donaldhtaylorjr

This is a journo all #hpm types should follow @JoanneKenen has feet in both hpm and journo world #hpm
Wed Jun 27 18:28:25 PDT 2012

ctsinclair

RT @aliciabloom: consistent messaging to negativity with positivity & reframing will be essential for #hospice & #palliative care #HPM
Wed Jun 27 18:28:37 PDT 2012

ctsinclair

@_lizzy_ I caught that at the end as well. #HPM

Wed Jun 27 18:28:49 PDT 2012

ctsinclair

RT @donaldhtaylorjr: This is a journo all #hpm types should follow @JoanneKenen has feet in both hpm and journo world "YES!" #HPM
Wed Jun 27 18:29:08 PDT 2012

jen_c_taylor

Hi! I'm very late..........sorry. When the daylight time changes it is difficult for me to join in. #hpm
Wed Jun 27 18:29:36 PDT 2012

ctsinclair

Topic 2: #ChoosingWisely campaign is open for more suggestions on procedures/tests/therapies we should think critically about... #HPM
Wed Jun 27 18:30:28 PDT 2012

ctsinclair

Topic 2 (cont): what might you suggest for over-used/harmful treatments in a hospice setting: http://t.co/GN41PckR #ChoosingWisely #HPM
Wed Jun 27 18:31:13 PDT 2012

ctsinclair

@jen_c_taylor No problem! Glad you are here, no matter day or night! #HPM
Wed Jun 27 18:31:33 PDT 2012

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aliciabloom

#ChoosingWisely- http://t.co/M5bFgoTT #hpm

Wed Jun 27 18:31:50 PDT 2012

ctsinclair

For more background on #ChoosingWisely see @GeriPalBlog post here: http://t.co/qe0YcBWf #HPM
Wed Jun 27 18:32:09 PDT 2012

RossJeanette

Hi all, joining late.. T2 certain meds like statins in hospice setting is something can be reduced #hpm
Wed Jun 27 18:33:12 PDT 2012

equijada

@ctsinclair t2 the overuse of lorazepam #choosingwisely #hpm

Wed Jun 27 18:33:35 PDT 2012

jfclearywisc

@ctsinclair Love #ChoosingWisely. Show web site to many folks. Struggle w #HPM twist 4 it...... Being rushed to inpatient unit hrs b4 death?
Wed Jun 27 18:33:39 PDT 2012

jfclearywisc

Agree especially for nausea & vomiting RT @equijada: @ctsinclair t2 the overuse of lorazepam #choosingwisely #hpm
Wed Jun 27 18:34:16 PDT 2012

aliciabloom

overused/harmful treatments late in disease trajectory: PEG tube placement, CPR, benzos in older adults, frequent hospitalizations #hpm
Wed Jun 27 18:35:19 PDT 2012

ctsinclair

@jfclearywisc I agree hospice inpatient units in danger of overuse; Taking away opportunity for dying at home. Should support in place #HPM
Wed Jun 27 18:35:39 PDT 2012

rfberry

@donaldhtaylorjr agree, though last year I was impressed with how extensively some staffers were on the big picture #hpm
Wed Jun 27 18:35:47 PDT 2012

ravipm2000

T2 Agree with the overuse of benzos especially in elderly with longer prognoses. #hpm
Wed Jun 27 18:35:49 PDT 2012

ctsinclair

@equijada Care to share more? #HPM

Wed Jun 27 18:35:49 PDT 2012

ctsinclair

@aliciabloom PEG tube placement for sure. Especially with great research by Teno showing no benefit in wound care with PEG #HPM
Wed Jun 27 18:36:19 PDT 2012

ctsinclair

@aliciabloom Also good data to show hospitalizations in patients with dementia much more harmful. #HPM
Wed Jun 27 18:37:15 PDT 2012

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Kamiyamay

#hpm @donaldtaylorjr UR right about CMS, ran into them at LTCF yesterd-wanted answ about orders (hospice or not)-auditing reimbursement #hpm
Wed Jun 27 18:37:36 PDT 2012

RossJeanette

T2 excessive use of nutritional supplements in seriously ill that can't really absorb them. #hpm
Wed Jun 27 18:38:14 PDT 2012

aliciabloom

delirium, agitation = distress RT @ctsinclair: Also good data to show hospitalizations in patients with dementia much more harmful. #hpm
Wed Jun 27 18:38:17 PDT 2012

jfclearywisc

@ctsinclair But aren't we giving examples more about overuse at #EOL rather than overuse in #HPM?
Wed Jun 27 18:38:24 PDT 2012

ctsinclair

@jfclearywisc good point #HPM

Wed Jun 27 18:39:05 PDT 2012

equijada

@ctsinclair I think with good intent, sometimes comfort is over promised with 2nd effect polypharmacy #hpm
Wed Jun 27 18:39:13 PDT 2012

ravipm2000

RT @RossJeanette: T2 excessive use of nutritional supplements in seriously ill that cant really absorb them. #hpm
Wed Jun 27 18:39:25 PDT 2012

aliciabloom

would like more consideration about how getting the information will change the plan of care/outcome before we start doing more work-up #hpm
Wed Jun 27 18:40:36 PDT 2012

_lizzy_

T2: a hospice patient who gets both a PEG tube and a trach, only to die within a month anyways. I wondered what was it all for? #hpm
Wed Jun 27 18:40:40 PDT 2012

ctsinclair

@equijada Good one. Very contrary. Ripe area for debate and good research. #HPM
Wed Jun 27 18:41:22 PDT 2012

jfclearywisc

@ctsinclair If one follows intent of #choosingwisely, it is about overuse by a discipline eg. #HPM Very self reflection of profession!
Wed Jun 27 18:41:36 PDT 2012

ctsinclair

Mine would be overuse of intrathecal pain pumps that are overpromised and usually underdeliver in pain control #ChoosingWisely #HPM
Wed Jun 27 18:41:58 PDT 2012

ctsinclair

RT @RossJeanette: T2 excessive use of nutritional supplements in seriously ill that cant really absorb them. #HPM
Wed Jun 27 18:42:14 PDT 2012

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aliciabloom

overuse of appetite stimulants in advanced illness. need to educate patient/family re: normal trajectory of disease progression #hpm
Wed Jun 27 18:42:29 PDT 2012

Kamiyamay

@ctsinclair @jfclearywisc 90% of patient goal at admit: to stay in my own home, more comfort, less confusion most of the time #hpm
Wed Jun 27 18:42:33 PDT 2012

GriefHealing

Facing Frailty at End of Life http://t.co/vFP7YuHE #eol #caregiving #hpm

Wed Jun 27 18:42:38 PDT 2012

ctsinclair

@RossJeanette I see a lot of nutritional supplements with indirect theoretical benefit but none realized. #HPM
Wed Jun 27 18:42:40 PDT 2012

AfternoonNapper

Good evening, all! Coming over from the fabulous madness that is #mHealth. #hpm
Wed Jun 27 18:42:45 PDT 2012

ctsinclair

@AfternoonNapper Welcome! #HPM

Wed Jun 27 18:43:19 PDT 2012

jfclearywisc

@ctsinclair Intrathecal pumps. R u seeing these used a lot in #hpm We don't. Probably need more. Some use them for $$ #ChoosingWisely #HPM
Wed Jun 27 18:43:21 PDT 2012

equijada

@ctsinclair Yes. Comes down to idea of alignment. True informed consent to avoid over/under treatment, truly in context of narrative. #hpm
Wed Jun 27 18:43:35 PDT 2012

aliciabloom

@_lizzy_ hope hospice patient isn't get a trach & PEG. lots of hospice appropriate patients end up getting them = delay in hospice care #hpm
Wed Jun 27 18:43:45 PDT 2012

ctsinclair

Getting ready to move on to topic 3: so wrap up your thoughts on #ChoosingWisely and comment over at @GeriPalBlog #HPM
Wed Jun 27 18:43:51 PDT 2012

rfberry

Since I don't know about the medication side of things I will say that I think social workers are underutilized #hpm
Wed Jun 27 18:44:14 PDT 2012

ctsinclair

@jfclearywisc Would love to see a regional study of hospice clinicians incidence of patients with intrathecal pumps. #HPM
Wed Jun 27 18:44:22 PDT 2012

ctsinclair

@jfclearywisc if only I knew someone who worked at a company with national hospice locations... #HPM
Wed Jun 27 18:44:41 PDT 2012

equijada

@jfclearywisc I'm not seeing too many intrathecal pumps, when I do, it's usually in
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someone with chronic back pain. #hpm

Wed Jun 27 18:44:45 PDT 2012

aliciabloom

:) RT @rfberry: Since I dont know about the medication side of things I will say that I think social workers are underutilized #hpm
Wed Jun 27 18:44:49 PDT 2012

Kamiyamay

@aliciabloom #hpm definitely role of #eol team...educate families!

Wed Jun 27 18:44:59 PDT 2012

ravipm2000

RT @rfberry: Since I dont know about the medication side of things I will say that I think social workers are underutilized #hpm
Wed Jun 27 18:45:03 PDT 2012

ctsinclair

@rfberry some feel they will be reported/hotlined to adult protective services by the social worker. Might be one reason, sadly #HPM
Wed Jun 27 18:45:43 PDT 2012

Psychgallica

RT @AAHPM: End-of-life decisions can have long-term effects on family http://t.co/oBVa13WU #hpm
Wed Jun 27 18:45:50 PDT 2012

jfclearywisc

@ctsinclair Isn't that you? :-) #HPM

Wed Jun 27 18:46:00 PDT 2012

_lizzy_

@GriefHealing Great article, thanks for posting. Join our chat! Yet one more article about folks not having conversations in time #hpm
Wed Jun 27 18:46:02 PDT 2012

ctsinclair

@equijada @jfclearywisc - I'm seeing them more and more in advanced stage cancer, declining function, cachexia #HPM
Wed Jun 27 18:46:13 PDT 2012

_lizzy_

RT @GriefHealing: Facing Frailty at End of Life http://t.co/j0qWf5TF #eol #caregiving #hpm

Wed Jun 27 18:46:17 PDT 2012

rfberry

I think social workers are better utilized in #hpm than other areas of healthcare, shld be more of them on teams/smaller caseloads
Wed Jun 27 18:46:51 PDT 2012

Kamiyamay

@aliciabloom @rfberry #hpm Re: underuse? varies organization to organization....good team, effective use!
Wed Jun 27 18:47:12 PDT 2012

aliciabloom

@ctsinclair @rfberry lots of misperceptions about SW profession in the community. wish we had title protection, think that would help #hpm
Wed Jun 27 18:47:16 PDT 2012

ctsinclair

@jfclearywisc Will try to lobby for a research department/team #HPM

Wed Jun 27 18:47:17 PDT 2012

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ctsinclair

@rfberry I agree about smaller caseloads for SW. #HPM

Wed Jun 27 18:47:31 PDT 2012

_lizzy_

@rfberry agreed! Use the SWs. It makes me sad when meds are first go-to before behavioral interventions w/ EOL dementia pts #hpm
Wed Jun 27 18:47:53 PDT 2012

ctsinclair

OK Topic 3: what media (book, movie/TV/song) have you experienced recently that has spurred thoughts about #HPM
Wed Jun 27 18:48:21 PDT 2012

_lizzy_

@rfberry the caseload that I know of in my city varies from 25-75 per social worker, with more than one hospice >30 per SW #hpm
Wed Jun 27 18:49:06 PDT 2012

AfternoonNapper

RT @ctsinclair: Topic 3: what media (book, movie/TV/song) have you experienced recently that has spurred thoughts about #hpm
Wed Jun 27 18:49:19 PDT 2012

ctsinclair

I ask this question every few months because I usually find something in the entertainment world relates back to my work #HPM
Wed Jun 27 18:49:51 PDT 2012

Sonolucent

RT @AAHPM: End-of-life decisions can have long-term effects on family http://t.co/oBVa13WU #hpm
Wed Jun 27 18:50:17 PDT 2012

equijada

@ctsinclair t3 Brave. Because I thought about my daughter getting married and became sad. WAIT. #hpm doesn't mean sad. My bad. #hpm
Wed Jun 27 18:50:23 PDT 2012

jfclearywisc

@rfberry Appreciate SW but get annoyed re interpretation of Medicare benefit says SW has to visit every 2/52. Some need it. Others not! #hpm
Wed Jun 27 18:50:26 PDT 2012

ravipm2000

T3 :"If I die young" by the Band Perry #hpm

Wed Jun 27 18:50:29 PDT 2012

_lizzy_

@ctsinclair My Ipad Smurfs game had a smurf who talked re his bucket list & the things he wanted to do before he died. I was shocked! #hpm
Wed Jun 27 18:50:32 PDT 2012

ctsinclair

@_lizzy_ What?! Smurfs and bucket list!? I have to check that out. Anyway you could record that and send it to me? #HPM
Wed Jun 27 18:51:17 PDT 2012

jfclearywisc

RT @_lizzy_: My Ipad Smurfs game had a smurf who talked re his bucket list & the things he wanted to do before he died. I was shocked! #hpm
Wed Jun 27 18:51:44 PDT 2012

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ctsinclair

I recently re-watched Toy Story 3 and the end when Andy gives his toys to the young girl and they say goodbye made me think a lot about #HPM
Wed Jun 27 18:52:07 PDT 2012

aliciabloom

Dr. VanScoy's "Last Wish: Stories to Inspire a Peaceful Passing" tells real patients stories & encourages discussion (@KnowYourWishes) #hpm
Wed Jun 27 18:52:13 PDT 2012

RyanWesthoff

Hi all, hpm fellow at KC Hospice and KU, joining late #hpm

Wed Jun 27 18:52:14 PDT 2012

ctsinclair

RT @_lizzy_: My Ipad Smurfs game had a smurf who talked re his bucket list & the things he wanted to do before he died. I was shocked! #HPM
Wed Jun 27 18:52:15 PDT 2012

aliciabloom

RT @_lizzy_: My iPad Smurfs game had a smurf who talked re his bucket list & the things he wanted to do before he died. I was shocked! #hpm
Wed Jun 27 18:52:33 PDT 2012

ctsinclair

@_lizzy_ I just googled it and I only found one reference, your Google Plus page! Ha! #HPM
Wed Jun 27 18:53:01 PDT 2012

Kamiyamay

@ctsinclair #hpm Listen to Christian rock/pop...lots of "if I were gone" "live like there is no tomorrow" etc.
Wed Jun 27 18:53:03 PDT 2012

aliciabloom

@_lizzy_ Smurfs talking bucket lists? amazing! i'm sure that's making some dialogue happen #hpm
Wed Jun 27 18:53:17 PDT 2012

AfternoonNapper

I've been watching A LOT of Top Gear lately (BBC). Makes me think of my bucket list I want to go FAST (in a car). #hpm
Wed Jun 27 18:53:20 PDT 2012

RossJeanette

T3 Second hand lions. It's a few years old. at the end of the movie 2 elder men decide to die by crashing their plane. #hpm
Wed Jun 27 18:53:21 PDT 2012

ctsinclair

@RyanWesthoff Hey Ryan. We're talking about what media (TV/Movie/Book/Music) recently made you think of #HPM
Wed Jun 27 18:53:31 PDT 2012

RyanWesthoff

T3 great example of dignity therapy by richard shindell cold missouri waters http://t.co/yplY4sjf #hpm
Wed Jun 27 18:53:41 PDT 2012

ravipm2000

RT @AfternoonNapper: Ive been watching A LOT of Top Gear lately (BBC). Makes me think of my bucket listI want to go FAST (in a car). #hpm
Wed Jun 27 18:53:54 PDT 2012

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_lizzy_

The season finale episode of The Finder "The Boy with the Bucket" had the main character's dad on hospice & part of story #hpm
Wed Jun 27 18:54:14 PDT 2012

ctsinclair

(Sidebar: I have had so much fun in chat, I'm now typing in the dark as the sun went down. It is dark in here!) #HPM
Wed Jun 27 18:54:22 PDT 2012

ravipm2000

T3 Star Wars is a classic reference to #hpm

Wed Jun 27 18:54:41 PDT 2012

ctsinclair

@AfternoonNapper Interesting connection! Top Gear -> Bucket List #HPM

Wed Jun 27 18:54:52 PDT 2012

aliciabloom

:) -> RT @ctsinclair: (Sidebar: I have had so much fun in chat, Im now typing in the dark as the sun went down. It is dark in here!) #hpm
Wed Jun 27 18:55:05 PDT 2012

ctsinclair

@RossJeanette I totally forgot about Second Hand Lions! I need to rent that one again. #HPM
Wed Jun 27 18:55:20 PDT 2012

ctsinclair

@ravipm2000 In what way is SW referencing HPM (I have my own thoughts, just wondering about yours) #HPM
Wed Jun 27 18:55:41 PDT 2012

jfclearywisc

@ctsinclair I just completed a bucket list item; Rode my bike 250 miles from London to Paris w @HelptheHospices! #HPM
Wed Jun 27 18:55:55 PDT 2012

RossJeanette

T3 I just showed the fellows "dying in Oregon" which was released last month in DVD #hpm
Wed Jun 27 18:55:58 PDT 2012

rfberry

@_lizzy_ yep, I think @NASW recommends a maximum caseload of 25 (I've heard of some w/100.. Scary & laying the foundation for burnout) #hpm
Wed Jun 27 18:56:19 PDT 2012

Kamiyamay

@ctsinclair #hpm People think I am morbid using the word enjoy with hpm, I laugh, tell them I grant last wishes!
Wed Jun 27 18:56:31 PDT 2012

equijada

@jfclearywisc wow. nice! #hpm

Wed Jun 27 18:56:39 PDT 2012

ctsinclair

I saw a movie trailer about 5 months ago about two desperate souls who find each other. One was a hospice nurse... #HPM
Wed Jun 27 18:56:45 PDT 2012

JoanneKenen

.@donaldhtaylorjr @ctsinclair thank you -- at moment have feet, arms and head in #SCOTUS world (but heart in #hpm world)..
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Wed Jun 27 18:56:50 PDT 2012

ravipm2000

Anakin refuses to let his loved ones die with dire consequences-turning to the dark side! He also undergoes life support. #hpm
Wed Jun 27 18:56:56 PDT 2012

aliciabloom

recently watched "Water for Elephants" & read the book. story centers around elderly man in nursing home & his own life review. #hpm
Wed Jun 27 18:57:11 PDT 2012

ctsinclair

...but it seemed cliche as a way to introduce that she is cold and unfeeling in real life, but in her work she is so compassionate. #HPM
Wed Jun 27 18:57:18 PDT 2012

JoanneKenen

@ctsinclair #IPAB yep. And if the court upholds health law, that's the next legal target....#hpm #hcr #scotus
Wed Jun 27 18:57:39 PDT 2012

ravipm2000

@ctsinclair The Jedi accept death and see it as part of one's existence. #hpm
Wed Jun 27 18:57:42 PDT 2012

ctsinclair

@aliciabloom This is why I love asking this question! I learn that so many different stories revolve around hpm issues #HPM
Wed Jun 27 18:58:11 PDT 2012

aliciabloom

RT @ravipm2000: The Jedi accept death and see it as part of one's existence. #hpm
Wed Jun 27 18:58:24 PDT 2012

ravipm2000

T3 "What dreams may come." with Robin Williams- thoughts about death and the afterlife #hpm
Wed Jun 27 18:58:33 PDT 2012

_lizzy_

Smurfs talking about bucket lists?! Leave it to the Belgians to be more advanced on #death topics. #hpm http://t.co/D455uGWX
Wed Jun 27 18:58:35 PDT 2012

ctsinclair

RT @jfclearywisc: @ctsinclair I just completed a bucket list item; Rode my bike 250 miles from London to Paris w @HelptheHospices! #HPM
Wed Jun 27 18:58:37 PDT 2012

Kamiyamay

@ctsinclair ....oh no....bad press #hpm

Wed Jun 27 18:58:42 PDT 2012

jfclearywisc

@ctsinclair Now u have @ravipm2000 going. He won't stop on Starwars and #Hpm!!!!
Wed Jun 27 18:58:51 PDT 2012

AfternoonNapper

@ravipm2000 Warriors have always been able to find the honor in death. #hpm
Wed Jun 27 18:59:12 PDT 2012

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ctsinclair

@RossJeanette I just taught an art school class on Western attitudes towards Death and Dying and they were going to watch that #HPM
Wed Jun 27 18:59:14 PDT 2012

aliciabloom

@ctsinclair didn't think about it that way at first, but in retrospect it's all about him finding meaning, considering his legacy. #hpm
Wed Jun 27 18:59:14 PDT 2012

ravipm2000

@jfclearywisc I can't help it Sir! I'm a fan! #hpm

Wed Jun 27 18:59:29 PDT 2012

ctsinclair

@jfclearywisc @ravipm2000 I think we will need to write a paper on it together. I agree with a lot of his points! #HPM
Wed Jun 27 18:59:36 PDT 2012

_lizzy_

@rfberry I have seen articles that prove that better SW ratio=fewer hospital visits. Unfortunately, we have to prove $ value #hpm
Wed Jun 27 18:59:39 PDT 2012

ctsinclair

@_lizzy_ If you could get a video of that I would love to have it. Would you want to write a guest post for @Pallimed on it? #HPM
Wed Jun 27 19:00:25 PDT 2012

ravipm2000

@ctsinclair It's a good pop culture reference! #hpm

Wed Jun 27 19:00:34 PDT 2012

SteveBednarski

RT @AfternoonNapper: @ravipm2000 Warriors have always been able to find the honor in death. #hpm
Wed Jun 27 19:00:43 PDT 2012

_lizzy_

@ctsinclair I didn't get a picture of the first time it came up, but I snapped a photo of the 2nd part of the dialogue. #hpm
Wed Jun 27 19:00:53 PDT 2012

ctsinclair

Oh my goodness me! it is 9pm! Thanks everyone for coming tonight! Please share something inspirational to sign off for the night! #HPM
Wed Jun 27 19:01:13 PDT 2012

rfberry

Great chat!! Thanks for hosting @ctsinclair #hpm

Wed Jun 27 19:01:20 PDT 2012

Kamiyamay

#hpm...on buckets...hope life grants you a bathtub but use analogy with patients bucket is now a cup, how can we make best of what is in cup
Wed Jun 27 19:01:24 PDT 2012

_lizzy_

@ctsinclair are you talking about the Smurfs or The Finder? #hpm
Wed Jun 27 19:01:32 PDT 2012

aliciabloom

@ctsinclair or 10pm! depending upon where you're sitting. #hpm

Wed Jun 27 19:01:50 PDT 2012

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ctsinclair

@ravipm2000 Pretty universal in appeal. Except for Jar Jar Binks. Even my 6 year olds cant stand him. (I may have brainwashed them) #HPM
Wed Jun 27 19:01:53 PDT 2012

ctsinclair

@_lizzy_ Smurfs. Could you replay that part? #HPM

Wed Jun 27 19:02:06 PDT 2012

JoanneKenen

.@ctsinclair @donaldhtaylorjr - after writing on #hospice #palliative care #hpm for years, now experiencing as a daughter, caregiver.
Wed Jun 27 19:02:09 PDT 2012

ctsinclair

@aliciabloom ;-) #HPM

Wed Jun 27 19:02:18 PDT 2012

_lizzy_

Thanks all and @ctsinclair for hosting. Great chat! I love it when it's so busy I can't keep up! #hpm
Wed Jun 27 19:02:19 PDT 2012

ctsinclair

@rfberry Have fun in Hawaii. Send some pics! #HPM

Wed Jun 27 19:02:33 PDT 2012

ravipm2000

@ctsinclair Agreed! #hpm

Wed Jun 27 19:02:33 PDT 2012

jfclearywisc

RT @Kamiyamay: #hpm..on buckets..hope life grants you a bathtub but use analogy; bucket is now a cup, how can we make best of what's in cup
Wed Jun 27 19:02:39 PDT 2012

_lizzy_

@ctsinclair I only have pictures and I don't have the very first one where he brought it up. I will try to contact the game makers :) #hpm
Wed Jun 27 19:03:12 PDT 2012

aliciabloom

great chat tonight! <high five @ctsinclair> #hpm

Wed Jun 27 19:03:33 PDT 2012

ctsinclair

I faovrited many tweets tonight. Must go back and explore more! Thanks everyone for coming. Have a great night. #HPM
Wed Jun 27 19:03:44 PDT 2012

ctsinclair

@_lizzy_ How far into the game was it. I'd play it just to get to that part. #HPM
Wed Jun 27 19:04:00 PDT 2012

SteveBednarski

@_lizzy_ @ctsinclair #hpm. Great insight from all tonight. Good job crew!!
Wed Jun 27 19:04:10 PDT 2012

_lizzy_

Can someone republish the link where the chat is stored? #hpm
Wed Jun 27 19:04:23 PDT 2012

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_lizzy_

@ctsinclair Ummm level 37 and it has taken me like 2 years to get there. ;) #hpm
Wed Jun 27 19:04:43 PDT 2012

RossJeanette

good night all. Good to Tweet you #hpm

Wed Jun 27 19:05:02 PDT 2012

SteveBednarski

RT @Kamiyamay: #hpm...on buckets...hope life grants you a bathtub but use analogy with patients bucket is now a cup, how can we make bes ...
Wed Jun 27 19:05:18 PDT 2012

produceconsume

RT @_lizzy_: Smurfs talking about bucket lists?! Leave it to the Belgians to be more advanced on #death topics. #hpm http://t.co/D455uGWX
Wed Jun 27 19:05:41 PDT 2012

ctsinclair

RT @Kamiyamay: hope life grants you a bathtub but use analogy with patients bucket is now a cup, how can we make best of what is in cup #HPM
Wed Jun 27 19:06:25 PDT 2012

ctsinclair

@RossJeanette good night! #HPM

Wed Jun 27 19:06:31 PDT 2012

ravipm2000

Great chat. Thanks for hosting @ctsinclair #hpm

Wed Jun 27 19:08:08 PDT 2012

Kamiyamay

@JoanneKenen 2 hrs ago said -there will be days U feel U won't make it, U will come out other side but U will B different -stronger #hpm
Wed Jun 27 19:08:51 PDT 2012

Kamiyamay

#hpm On call...phone ringing...night all!

Wed Jun 27 19:10:34 PDT 2012

ctsinclair

@aliciabloom status of #HPM chat next week because of Wed July 4th? cc @rfberry
Wed Jun 27 19:14:48 PDT 2012

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