II

111TH CONGRESS 2D SESSION

S. 3036

To establish the Office of the National Alzheimers Project.

IN THE SENATE OF THE UNITED STATES

FEBRUARY 24, 2010 Mr. BAYH (for himself, Ms. COLLINS, and Mr. LEMIEUX) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions

A BILL
To establish the Office of the National Alzheimers Project. 1 Be it enacted by the Senate and House of Representa-

2 tives of the United States of America in Congress assembled, 3 4

SECTION 1. SHORT TITLE.

This Act may be cited as the National Alzheimers

5 Project Act. 6 7
SEC. 2. OFFICE OF THE NATIONAL ALZHEIMERS PROJECT.

(a) ESTABLISHMENT

OF

OFFICE.There is estab-

8 lished in the Office of the Secretary of Health and Human 9 Services the Office of the National Alzheimers Project
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10 (referred to in this Act as the Office). 11 (b) PURPOSE

OF THE

OFFICE.The Office shall

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(1) accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimers; (2) be responsible for the creation and maintenance of an integrated national plan to overcome Alzheimers; (3) help to coordinate the health care and treatment of citizens with Alzheimers; (4) ensure the inclusion of ethnic and racial populations at higher risk for Alzheimers or least likely to receive care, in clinical, research, and service efforts with the purpose of decreasing health disparities in Alzheimers; (5) coordinate with international bodies to integrate and inform the fight against Alzheimers globally; and (6) provide information and coordination of Alzheimers research and services across all Federal agencies. (c) DIRECTOR OF THE OFFICE. (1) APPOINTMENT.The President shall appoint a Director of the Office. (2) DUTIES (A) IN fice shall
OF THE DIRECTOR. GENERAL.The

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Director of the Of-

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(i) oversee the creation and updating of the national plan described in subparagraph (B); (ii) use discretionary authority to evaluate all Federal programs around Alzheimers, including budget requests and approvals; and (iii) prepare and submit to the President the annual budget estimate for the Office. (B) NATIONAL
PLAN.The

Director of the

Office shall carry out an annual assessment of the Nations progress in preparing for the escalating burden of Alzheimers, including both implementation steps and recommendations for priority actions based on the assessment. (3) SERVICE
BY DIRECTOR.The

Director of

the Office shall serve on the advisory board of the Office of Science and Technology to promote research efforts into mechanisms to slow and stop the development of Alzheimers for those at risk of developing the disease. (d) ADVISORY COUNCIL. (1) IN
GENERAL.There

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is established in the

Office an Advisory Council on Alzheimers Research

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and Treatment (referred to in this Act as the Advisory Council). (2) MEMBERSHIP. (A) FEDERAL
MEMBERS.The

Advisory

Council shall be comprised of the following experts: (i) A designee of the Centers for Disease Control and Prevention. (ii) A designee of the Administration on Aging. (iii) A designee of the Centers for Medicare & Medicaid Services. (iv) A designee of the Indian Health Service. (v) A designee of the Office of the Director of the National Institutes of Health. (vi) The Surgeon General. (vii) A designee of the National Science Foundation. (viii) A designee of the Department of Veterans Affairs. (B) NON-FEDERAL
MEMBERS.In

addi-

tion to the members outlined in subparagraph (A), the Advisory Council shall include 12 ex-

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pert members from outside the Federal Government, which shall include (i) 2 Alzheimer patient advocates; (ii) 2 Alzheimer caregivers; (iii) 2 health care providers; (iv) 2 representatives of State health departments; (v) 2 researchers with Alzheimer-related expertise in basic, translational, clinical, or drug development science; and (vi) 2 voluntary health association representatives, including a national Alzheimers disease organization that funds research and has demonstrated experience in care and patient services, and a Statebased advocacy organization that provides services to families and professionals, including information and referral, support groups, care consultation, education, and safety services. (3) MEETINGS.The Advisory Council shall meet quarterly and such meetings shall be open to the public. (4) ADVICE.The Advisory Council shall advise the Director of the Office.

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6 1 2 3 4 5 6 7 (5) ANNUAL
REPORT.The

Advisory Council

shall provide to the Director of the Office (A) recommendations for information to be included in the annual report to Congress by the Office; and (B) an annually updated national plan. (e) ANNUAL REPORT.The Director of the Office

8 shall submit to Congress 9 10 11 12 13 14 15 (1) an annual report that includes an evaluation of all nationally and federally funded efforts in Alzheimers research, clinical care, institutional, and home- and community-based programs and their outcomes; and (2) an annually updated national plan. (f) SUNSET.The Office shall expire on December

16 31, 2025.

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