Professional Documents
Culture Documents
University of Kent, Canterbury, UK, 2University of East Anglia, Norwich, UK, and 3Oxleas NHS Trust, UK
Abstract
Background Men with intellectual disability (ID) and sexually abusive behaviour are a disempowered and marginalised
group. Nevertheless, as service users, they can be consulted and involved in a variety of different ways, including
ascertaining their views of the services they receive.
Method A group of 16 men with ID and sexually abusive behaviour were interviewed to ascertain their views approximately 2
months after completing a 1-year group cognitive behavioural treatment (CBT) for sexual offending. Two raters
independently reviewed interview transcripts and participant responses were summarised.
Results The most salient components of treatment recalled by participants were: sex education; legal and illegal behaviours
and their consequences; and discussions about specific sexual assaults. Only 3 of the 16 participants stated that they had
problems with sexual offending, and only 1 identified that he had learnt about victim empathy, although this is an important
component of treatment. Having support, the knowledge that they had the same problems as other group members, and
talking through problems, were appreciated as some of the best things about the group, while the worst things were
generally person-specific. Participants had mixed views on talking about their own offences during group sessions and,
overall, viewed the experience as difficult but helpful.
Conclusions Valuable insights into the aspects of treatment that group members found useful were explored. Such insights
are often not captured by studies that assess the efficacy of treatment models using treatment-specific measures only, and
these are important in defining the quality of services provided.
Keywords: Intellectual disability, sexual offending, user view, cognitive behavioural treatment, sensitive research,
empowerment
Introduction
Since the 1980s, the views of people with intellectual
disability (ID) about the services they receive have
been considered in the literature (McKenzie,
Murray, & Matheson, 1999). Many studies have
examined the views of service users with regard to
changes in residential service provision (e.g.,
Murphy, Estien, & Clare, 1996; Smyly & Elsworth,
1997), and on current residential service provision
and quality of life (e.g., Azmi, Hatton, Emerson, &
Caine, 1997; Burchard, Pine, & Gordon, 1990;
Dudley, Calhoun, Ahlgrim-Delzell, & Conroy,
1998; Felce & Perry, 1995; Flynn & Saleem, 1986;
Holland & Meddis, 1997; Lowe, 1992; McVilly,
1995). Other studies have assessed service users
satisfaction with the service they receive from
community support teams (Crocker, 1989; Witts &
Gibson, 1997), or following specific intervention
approaches (e.g., Barber, Jenkins, & Jones, 2000;
Correspondence: Glynis H. Murphy, University of Kent, Canterbury, Kent CT2 7LZ, UK. E-mail: G.H.Murphy@kent.ac.uk
ISSN 1366-8250 print/ISSN 1469-9532 online # 2007 Australasian Society for the Study of Intellectual Disability Inc.
DOI: 10.1080/13668250701413715
107
108
Method
Participants
A group of 16 men were interviewed following
completion of group cognitive behavioural treatment
for sexually abusive behaviour. Criteria for participation in the group treatment program included: a
history of involvement in ID services; being aged
between 18 and 65 years (with each group having a
maximum age range of 30 years); a history of
engaging in sexually abusive behaviour; and being
in a stable residential placement (i.e., not living
Measure
Service User Interview. The Service User Interview is
a semi-structured interview developed by one of the
authors (GM). It comprises 14 interview questions
which are designed to access the participants views
and understanding following group cognitive
behavioural treatment (CBT) for individuals with
ID who sexually offend or are at risk of sexual
offending. The interview questions fall broadly into
3 categories: (i) Factual/memory-related questions
designed to check participant-recalled basic aspects
of the group (e.g., Where did the Mens Group1
meet?, On what days did the Mens Group
meet?); (ii) Content questions concerning the
material covered during the group treatment
program (e.g., Did the group have some rules?
[probe what they were]); and (iii) Views of treatment
questions requesting the participants views on the
group (e.g., What was the best and worst thing
about the Mens Group?).
The purpose of the memory-related questions was
to provide a context for the interview and for the
interviewer to ascertain what the participant remembered about the treatment group (and whether the
interview should proceed). It is well known that
people with ID often have difficulties with cognitive
functions such as memory (e.g., Clare &
Gudjonsson, 1993; Clements, 1987). Moreover,
the participant might also attend other groups
(e.g., in day services) and so could become confused
as to which group is being asked about. The
questions on content (while also assessing memory
for the treatment group), provided information on
the participants understanding of concepts learnt in
treatment. The final set of questions provided an
opportunity for the participant to describe their
views on the group.
The interview was designed to be used by people
who are accustomed to working with individuals
with ID. The interview was flexible and there was
scope for the interviewer to ask additional questions
in order to clarify responses and to obtain additional
views.
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Results
Background characteristics
Background characteristics of the participants are
given in Tables 1 and 2. All participants had been in
contact with either psychiatric/psychology services or
ID services as adults (in three cases for under 3
years; in two cases for between 3 and 4 years; and in
11 cases for over 4 years). Eight participants had a
statutory requirement to attend treatment: seven
were detained under the Mental Health Act (1983)
and one had a community rehabilitation order
(previously known as a probation order). The
remaining eight participants were not legally
required to attend treatment.
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Range
Mean SD
Age
2061
36.5 11.6
IQ
5183
66.0 8.8
Comorbid psychiatric diagnoses
(Percentage)
Autistic spectrum disorders
38% (n56)
Personality disorders
31% (n55)
Sexual and gender identity disorders 25% (n54)
Mood disorders
19% (n53)
Schizophrenia/other psychotic
13% (n52)
disorders
Community
Supported in own home
In own home unsupported
Living with family or close
relative
Group residential home
With support person in
support persons own home
Secure provision
Low secure
Medium secure
Prior to start of
group treatment
(N516)
At completion
of group
treatment
(N516)
(n57)
2
0
1
(n510)
2
1
1
2
2
4
2
(n59)
4
5
(n56)
3
3
Dont know
n51 (8%)
Dont know
n50 (0%)
Dont know
n50 (0%)
Incorrect response (unable to
name any group facilitators)
n51 (6%)
Irrelevant person mentioned
n50 (0%)
No
n50 (0%)
Partially correct response (able to name
some group facilitators)
n59 (56%)
Responses
Dont know
n50 (0%)
Dont know
n52 (13%)
Dont know
n51 (7%)
Incorrect location
n54 (25%)
Incorrect day
n50 (0%)
Incorrect answer
(less than 1K hours; more than 2K hours)
n52 (14%)
Incorrect number of months
n54 (31%)
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Correct location
n512 (75%)
Correct day
n513 (87%)
Correct answer
(1K2K hours)
n511 (79%)
Correct number of months
( 2 months)
n58 (62%)
Relevant person mentioned
n514 (100%)
Yes
n516 (100%)
Full response (able to name
all group facilitators)
n56 (38%)
Where did the Mens Group meet?
(N516)
On what days did the Mens Group meet?
(N515)
How long did the sessions last (on each day?)
(N514)
Factual/memory questions
Discussion
This sample of men with ID and sexually abusive
behaviour forms part of a larger study assessing the
effectiveness of group cognitive behavioural treatment with this population (Murphy, Sinclair, Hays,
Heaton, & SOTSEC-ID Group, 2006). The background characteristics of this sample are similar to
those described in other studies (e.g., Hayes, 1991;
Lindsay, Law, Quinn, Smart, & Smith, 2001;
Thompson & Brown, 1997), and are fully documented elsewhere for the larger sample (see Murphy
et al., 2006).
The factual/memory-related questions of the Mens
Group interview provided a prompt to participants
and a lead in to the content and views of treatment
questions. They also allowed the interviewer an
opportunity to assess whether participants recalled
enough about the group to be able to answer more
in-depth questions. The majority of participants
recalled the day and timing of the Mens Group, why
they had been asked to attend, and who else was
involved in the treatment group. This is probably not
surprising given that the interviews were conducted
approximately 2 months after completion of the
treatment.
The content questions explored what the participants had learnt in treatment. Less than half (44%)
stated that the aim of group was to help with sexual
112
S-J. Hays et al.
Responses
To talk about
problems/to
get help
n53 (19%)
To learn about
relationships/sex
education
n51 (6%)
Mention of sexual
problems/sexual
offending/offending
n55 (31%)
Mention of self
having sexual
offending problems
n52 (13%)
To talk about
problems/get help/
talk about past
n52 (13%)
Yes
n513 (81%)
No
n52 (13%)
Unsure
n51 (6%)
Be on time/start
on time
n53 (23%)
No interrupting/talking
when someone else is
speaking
n54 (31%)
No swearing at each
other/no swearing
n55 (39%)
Confidentiality rule
and exceptions
n511 (85%)
Review of week
good things and
bad things
n52 (13%)
Mentioned talking
about sexual problems/
sexual assaults
n55 (31%)
Relapse prevention
description/example
given
n52 (13%)
Sex education/learnt
about sex/sexual
health/relationships
n510 (63%)
Victim empathy
(e.g., talked about
how the victim felt)
n50 (0%)
Responses
Yes
n59 (60%)
No
n55 (33%)
Unsure
n51 (7%)
Yes
n52 (20%)
No
n56 (60%)
Unsure
n52 (20%)
Mentioned sex
education/relationships
or aspects of sex
education (e.g., how
to put on a condom)
n54 (27%)
Mentioned victim
empathy (e.g., how
victim feels)
(N516)
n51 (6%)
Four-stage
model why I
committed my
offence. Mentioned
any of the stages or
examples provided
n52 (13%)
Relapse
prevention
description/
example
provided
n52 (13%)
Other answer
(irrelevant) provided
(e.g., budgeting
n51 (6%)
Meeting people
n54 (25%)
Mentioned specific
group content (e.g.,
books/pictures good);
mentioned aspects of
the treatment model
n53 (19%)
Mentioned having
support; same
problems as other
group members;
talking through
problems
n54 (25%)
Mentioned
helping each
other
n52 (13%)
Vague answer
(e.g., enjoyed it.)
n53 (19%)
Mentioned specific
group content as
worst thing
n52 (13%)
Vague answer
(e.g., it was
boring.)
n53 (19%)
Yes no conditions
n56 (38%)
113
114
115
of treatment. We are grateful to assistant psychologists Sam Durvance and Jenny Reeve who
provided support to one of the treatment groups
and assisted with some of the Mens Group
interviews. Many thanks also to Kathryn Heaton,
research worker, for her rating of the transcripts.
Finally we would also like to thank the UK
Department of Health for funding this research.
Notes
1 Mens Group was the title given to the group for men with
ID who sexually offend.
2 As many men with ID do not come into contact with the
criminal justice system, the term sexually abusive incident(s) will be used throughout this paper to refer to
sexually related behaviour for which the other person was
non-consenting, and the behaviour would be defined as illegal
within the jurisdiction in which it occurred (Sinclair et al.,
2002, p. 4). Index sexually abusive incident refers to the
most recent incident prior to the start of the treatment group,
whether or not it came to the attention of the police.
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