Dream come true ...

HEMOPHILIA SOCIETY
BANGALORE CHAPTER
- 23 years of hemophilia care

Hemophilia?
Hemophilia is a rare hereditary
bleeding disorder.
Person with Hemophilia(PwH) has
longer clotting time than normal
person
A Small Prick :
Normal Person takes 1-2
mins to clot
PwH will take > 30 mins

Hemophilia Cause?
MISSING clotting factor in blood
cause Hemophilia.
Factor-VIII or Factor IX
deficiency is seen in majority of
patients

Clotting needs 13
proteins called

1 in 5,000 males
suffer from
hemophilia

Women are Carriers

Reference : http://www.cdc.gov/ncbddd/hemophilia/data.html

What happens?

Untreated swelling/bleeds in
joints/muscles leads to disability
Sometime it may lead to critical
condition and death

Treatment
Only medicine to treat any swelling
or bleeding is replacement of
missing clotting factor
Its very expensive
95% of our patients cannot afford
treatment

Hemophilia Society Bangalore Chapter

Challenges

1992
10 of us (patients)
along with doctors
started

Hard to get medicine

No awareness on hemophilia
management
Majority of our patients were
disabled

Today ...

Identified 900 patients in and around

Bangalore
Supporting educational program for
hemophilia patients
DEDICATED physiotherapy program
Successfully handled critical cases like
brain hemorrhage, IC Bleeds, accidents
etc
Rehabilitation for number of patients

Programs

Physiotherapy Workshops

Open clinic/bounding
meetings

Dental/Medical Clinic

Hemophilia
Awareness programs

Free distribution of supporting

aids

Educational
assistance

Micro Finance for

self employment

For the Last 22 years we did not have a specific hemophilia care center

To administer medicine, place to rest after treatment

Long distance patients cannot stay over night

No privacy for patient/family counseling

Thanks to
Government of Karnataka

Providing space in

Victoria Hospital
Bangalore

Victoria Hospital Its a premier Medical Institution and

attached to Bangalore Medical College
Location : City Market

Cost of setting up
Hemophilia Care Center in
Victoria hospital for
equipments, infrastructure is
Rs. 12,00,000 for civil and
infrastructure work
Rs. 15,00,000 for
equipments and furniture
This will benefits over 1200
patients across Karnataka

Floor Plan Space provided

Hemophilia Care center

Proposed
Hemophilia Care center

First Floor

Physo/Gym/Relaxing

Gaming
Fun Area

Physiotherapy

Inpatient Care Ward

Coagulation Laboratory

Storage

Coagulation Laboratory

Mini Seminar Hall

HOD Cabin

Record Room

Physiotherapy
Gym

Counseling

Front Office

Seminar/Training Hall

Doctors Chamber
Toilet
Consultation Room

Options for Sponsors

Out Patient Department (OPD)

Emergency Treatment Block

Coagulation Laboratory equipments

Physiotherapy Block & equipments

Flooring/Tiles Machinery works, Electrical Fittings etc

Air conditions, Table chairs and other furnishings

Restroom (Toilets)

Conference/Seminar Hall

Storage, Furniture & Fixtures

Appeal
8 Years of our effort with government Ministers, Secretaries to
sensitize importance of Hemophilia Care Center has Dream
come true to our 900 patients and families. Ultimately God
heard our prayers and the prayers of every Hemophilic of the
state, we have been allocated 5000sq feet in Victoria Hospital
with a condition that the complete interior work should be
done by us. We have taken up this challenge with a firm belief
that we have a fantastic set of friends/supporters and
relatives who will come forward and help us achieve this
dream.
So we request all of you who wish to donate to make Cheques
in the name of Hemophilia Society Bangalore chapter
All Donations are exempted under 80g of the income tax act 1961

Donations
International donations via wire
transfer Our FCRA A/c details

A/c Name: Hemophilia Society

Bangalore chapter

Indian donation via wire transfer

A/c Name: Hemophilia Society

Bangalore chapter

A/c No: 0041010100002971

Branch: Vasanthnagara'millers Road

Bank Name: Punjab National Bank

IFSC: PUNB0624600

Bank Name: Punjab National Bank

Swift Code: PNBINBBDIB

IFSC: PUNB0624600

MICR Code: 560024032

MICR Code: 560024032

A/c No: 0041010100000263

Branch : Vasanthnagara'millers
Road

All Donations are exempted under 80g of the income tax act 1961

Cheques to be sent

Hemophilia Society Bangalore chapter

Bhagwan Mahaveer Jain hospital.
Millers Road Vasanth Nagar
Bangalore-560052
Tel: 080- 22208736, 080-40990001
Mobile: 09886050060

All Donations are exempted under 80g of the income tax act 1961

Premroop, +91.98860.50060,
prem@hemophilia.in