Scribd Logo
Upload

Welcome to Scribd!

  • Digital Pharma West 2010 Day 3

    Uploaded by

    philbaumann
    357 views10 pages
    These are the tweets for Day 2 of Digital Pharma West held in San Francisco June 28-30, 2010. The hashtag for the conference is #DigPharm. Agenda for Day 3: Chair Amy Chafin Director, Marketing Communications, Global Oncology LILLY 8:45 Analyzing Online Conversations from RA Patients on the Web: What Social Media Can Teach Us about the Patient Journey Healthcare consumers are flocking to the social Web to post about their experiences with a given disease and the treatments they hope will help fight it. State-of-the-art search software is available to capture and process these conversations, meaning pharma has access to a wealth of consumer dialogues. Yet ‘listening’ to patients doesn’t mean we’re hearing them. For one month, HealthEd health educators and strategists mined through some of the thousands of conversations about rheumatoid arthritis occurring in the social media. Jeff Greene presents findings from that effort, including implications for brands across every disease category: What is the patient journey and how can it inform communications planning for pharma brands? How can online conversations help us understand the patient journey for a given disease? What are some common barriers to RA treatment, and how did we find them on the Web? How can brands identify knowledge gaps or myths and address them through patient education? Speakers Jeff Greene Director of Strategic Services, Social Media HEALTHED Susan Eno Collins, SVP, Health Education Research and Development HEALTHED 9:30 A Step by Step Walk through of What Went into Creating an MS Community, with The Three Core Project Leaders from Acorda Therapeutics MS Community: How we fulfilled our goal to create a place where people can share the power of the Walk MS experience with others Creation of IWalk: Acorda Therapeutics created this website as part of our strong commitment to people with MS and the broader community Aspects of Social Networking put to use through IWalk The Successful Results of IWalk Speakers Erica Wishner Director Consumer Marketing ACORDA THERAPEUTICS Maria Verastegui Creative Director ACORDA THERAPEUTICS Mike Russo Assistant Director-Marketing Services ACORDA THERAPEUTICS 10:15 Networking and Refreshment Break 10:45 Co-Presentation with Hi Line Media and Viscira Go Where Your Targets Are: Broadcasting Live, Interactive Programs Over the Internet Remember when 35mm slides were the mainstay of presentations? Rethink PowerPoint and engage your audience with compelling programs Through our partnership with Major League Baseball Advanced Media we offer Emmy Award winning, streaming video that is the best in the industry and will help you reach your targets wherever they are Our dedicated studio team leverages multiple camera angles, picture-in-picture, and animation to create fully produced shows that are broadcast live over the web to restaurants, personal computers, and the iPhone This highly interactive, and engaging format offers tremendous value for healthcare professional, sales training and consumer programs Speaker Jayson Dupre VP Medical Strategy HILINE DIGITAL MEDIA Digital Solutions: Maximizing Return on Interactive (ROI) What are some of the top do’s and don'ts in interactive marketing? How to develop new-media programs for greatest impact? What’s next in digital strategy and tactics? Speaker Dave Gulezian President & CEO VISCIRA 11:15 Listen to a Unique Conversation between Leading HCP Marketers and Two Top MDs/Social Media Activists Why are there so few physicians engaged in the social space? Communicating directly with docs online-What is working and what isn’t? How to walk the delicate line between providing physicians with educational information versus marketing messages How emerging technology is integrated into the physician workflow and how can pharmaceutical marketers best participate Led by Jason Appel Director, Physician Relationship Marketing AMGEN With Scott Ellis Associte Director, New

    Copyright

    © Attribution Non-Commercial (BY-NC)

    Available Formats

    PDF, TXT or read online from Scribd

    Did you find this document useful?

    Is this content inappropriate?

    Report this Document
    These are the tweets for Day 2 of Digital Pharma West held in San Francisco June 28-30, 2010. The hashtag for the conference is #DigPharm. Agenda for Day 3: Chair Amy Chafin Director, Marketing Communications, Global Oncology LILLY 8:45 Analyzing Online Conversations from RA Patients on the Web: What Social Media Can Teach Us about the Patient Journey Healthcare consumers are flocking to the social Web to post about their experiences with a given disease and the treatments they hope will help fight it. State-of-the-art search software is available to capture and process these conversations, meaning pharma has access to a wealth of consumer dialogues. Yet ‘listening’ to patients doesn’t mean we’re hearing them. For one month, HealthEd health educators and strategists mined through some of the thousands of conversations about rheumatoid arthritis occurring in the social media. Jeff Greene presents findings from that effort, including implications for brands across every disease category: What is the patient journey and how can it inform communications planning for pharma brands? How can online conversations help us understand the patient journey for a given disease? What are some common barriers to RA treatment, and how did we find them on the Web? How can brands identify knowledge gaps or myths and address them through patient education? Speakers Jeff Greene Director of Strategic Services, Social Media HEALTHED Susan Eno Collins, SVP, Health Education Research and Development HEALTHED 9:30 A Step by Step Walk through of What Went into Creating an MS Community, with The Three Core Project Leaders from Acorda Therapeutics MS Community: How we fulfilled our goal to create a place where people can share the power of the Walk MS experience with others Creation of IWalk: Acorda Therapeutics created this website as part of our strong commitment to people with MS and the broader community Aspects of Social Networking put to use through IWalk The Successful Results of IWalk Speakers Erica Wishner Director Consumer Marketing ACORDA THERAPEUTICS Maria Verastegui Creative Director ACORDA THERAPEUTICS Mike Russo Assistant Director-Marketing Services ACORDA THERAPEUTICS 10:15 Networking and Refreshment Break 10:45 Co-Presentation with Hi Line Media and Viscira Go Where Your Targets Are: Broadcasting Live, Interactive Programs Over the Internet Remember when 35mm slides were the mainstay of presentations? Rethink PowerPoint and engage your audience with compelling programs Through our partnership with Major League Baseball Advanced Media we offer Emmy Award winning, streaming video that is the best in the industry and will help you reach your targets wherever they are Our dedicated studio team leverages multiple camera angles, picture-in-picture, and animation to create fully produced shows that are broadcast live over the web to restaurants, personal computers, and the iPhone This highly interactive, and engaging format offers tremendous value for healthcare professional, sales training and consumer programs Speaker Jayson Dupre VP Medical Strategy HILINE DIGITAL MEDIA Digital Solutions: Maximizing Return on Interactive (ROI) What are some of the top do’s and don'ts in interactive marketing? How to develop new-media programs for greatest impact? What’s next in digital strategy and tactics? Speaker Dave Gulezian President & CEO VISCIRA 11:15 Listen to a Unique Conversation between Leading HCP Marketers and Two Top MDs/Social Media Activists Why are there so few physicians engaged in the social space? Communicating directly with docs online-What is working and what isn’t? How to walk the delicate line between providing physicians with educational information versus marketing messages How emerging technology is integrated into the physician workflow and how can pharmaceutical marketers best participate Led by Jason Appel Director, Physician Relationship Marketing AMGEN With Scott Ellis Associte Director, New

    Copyright:

    Attribution Non-Commercial (BY-NC)
    Download as PDF, TXT or read online from Scribd
    Flag for inappropriate content
    357 views10 pages

    Digital Pharma West 2010 Day 3

    Uploaded by

    philbaumann
    These are the tweets for Day 2 of Digital Pharma West held in San Francisco June 28-30, 2010. The hashtag for the conference is #DigPharm. Agenda for Day 3: Chair Amy Chafin Director, Marketing Communications, Global Oncology LILLY 8:45 Analyzing Online Conversations from RA Patients on the Web: What Social Media Can Teach Us about the Patient Journey Healthcare consumers are flocking to the social Web to post about their experiences with a given disease and the treatments they hope will help fight it. State-of-the-art search software is available to capture and process these conversations, meaning pharma has access to a wealth of consumer dialogues. Yet ‘listening’ to patients doesn’t mean we’re hearing them. For one month, HealthEd health educators and strategists mined through some of the thousands of conversations about rheumatoid arthritis occurring in the social media. Jeff Greene presents findings from that effort, including implications for brands across every disease category: What is the patient journey and how can it inform communications planning for pharma brands? How can online conversations help us understand the patient journey for a given disease? What are some common barriers to RA treatment, and how did we find them on the Web? How can brands identify knowledge gaps or myths and address them through patient education? Speakers Jeff Greene Director of Strategic Services, Social Media HEALTHED Susan Eno Collins, SVP, Health Education Research and Development HEALTHED 9:30 A Step by Step Walk through of What Went into Creating an MS Community, with The Three Core Project Leaders from Acorda Therapeutics MS Community: How we fulfilled our goal to create a place where people can share the power of the Walk MS experience with others Creation of IWalk: Acorda Therapeutics created this website as part of our strong commitment to people with MS and the broader community Aspects of Social Networking put to use through IWalk The Successful Results of IWalk Speakers Erica Wishner Director Consumer Marketing ACORDA THERAPEUTICS Maria Verastegui Creative Director ACORDA THERAPEUTICS Mike Russo Assistant Director-Marketing Services ACORDA THERAPEUTICS 10:15 Networking and Refreshment Break 10:45 Co-Presentation with Hi Line Media and Viscira Go Where Your Targets Are: Broadcasting Live, Interactive Programs Over the Internet Remember when 35mm slides were the mainstay of presentations? Rethink PowerPoint and engage your audience with compelling programs Through our partnership with Major League Baseball Advanced Media we offer Emmy Award winning, streaming video that is the best in the industry and will help you reach your targets wherever they are Our dedicated studio team leverages multiple camera angles, picture-in-picture, and animation to create fully produced shows that are broadcast live over the web to restaurants, personal computers, and the iPhone This highly interactive, and engaging format offers tremendous value for healthcare professional, sales training and consumer programs Speaker Jayson Dupre VP Medical Strategy HILINE DIGITAL MEDIA Digital Solutions: Maximizing Return on Interactive (ROI) What are some of the top do’s and don'ts in interactive marketing? How to develop new-media programs for greatest impact? What’s next in digital strategy and tactics? Speaker Dave Gulezian President & CEO VISCIRA 11:15 Listen to a Unique Conversation between Leading HCP Marketers and Two Top MDs/Social Media Activists Why are there so few physicians engaged in the social space? Communicating directly with docs online-What is working and what isn’t? How to walk the delicate line between providing physicians with educational information versus marketing messages How emerging technology is integrated into the physician workflow and how can pharmaceutical marketers best participate Led by Jason Appel Director, Physician Relationship Marketing AMGEN With Scott Ellis Associte Director, New

    Copyright:

    Attribution Non-Commercial (BY-NC)
    Download as PDF, TXT or read online from Scribd
    Flag for inappropriate content
    of 10

    cdebie: RT @friedah03: Yep!

    RT @DaphneLeigh: Good advice for pharma doing SM: Cleary


    define your measurement objectives beforehand. #digpharm
    6/30/2010 00:23

    cpmahoney: RT @Doctor_V: Time spent by a physician on a social site is no measure of engagement


    #digpharm
    6/30/2010 05:56

    doctoranonymous: Planning world domination w. @Doctor_V #digpharm (@ Starbucks) http://4sq.com/dvyglE


    6/30/2010 07:38

    philbaumann: Digital Pharma West 2010 Tweets Day 2 - http://scr.bi/aWymtY #DigPharm


    6/30/2010 09:02

    LauraN546: HealthEd leverages AlterianSM2 for social media audit/listening. Many tools out there -
    what are you using? #digpharm
    6/30/2010 09:02

    friedah03: A timely tweet from an RA #epatient blogger RT @rawarrior: Pix of my RA:


    http://bit.ly/d8tAvz Why I showed my doc today. #digpharm
    6/30/2010 09:11

    doctoranonymous: RT @PhilBaumann Digital Pharma West 2010 Tweets Day 2 http://scr.bi/aWymtY


    #DigPharm
    6/30/2010 09:18

    philbaumann: RT @friedah03: A timely tweet from an RA #epatient blogger RT @rawarrior: Pix of my


    RA: http://bit.ly/d8tAvz ... #digpharm
    6/30/2010 09:23

    healtheddigital: HealthEd wishes our colleagues Happy #SMday! #fdasm #digpharm #socpharm #sxsh
    #hcsm
    6/30/2010 09:50

    Digitas_Health: RT @unclebrendan: Totally appreciate @DavidRThompson's candor regarding the issues


    pharma has with social media, but it definitely caused a stir :) #digpharm
    6/30/2010 10:45

    Digitas_Health: RT @unclebrendan: "Print lasted 500 years. You don't have 500 years to get this"
    @philbaumann on understanding how technology has changed marketing #digpharm
    6/30/2010 10:45

    rawarrior: Thanks! // RT Timely tweet from an RA #epatient @friedah03 @PhilBaumann


    @Healtheddigital Pix of my RA: http://bit.ly/d8tAvz ... #digpharm
    6/30/2010 10:53

    kevinkruse: @aligmartin Ali, I couldn't make #DigPharm but following remotely. Did you post or
    distribute your slides?
    6/30/2010 10:57

    unclebrendan: Jayson Dupre from HiLine Digital Media is trying to convince us that doctors like to have
    fun... I'm not buying it ;) #digpharm
    6/30/2010 10:58

    bobbrooks: HiLine presents FibroForum a live, online interactive program for MDs. Impressive
    content. #Digpharm
    6/30/2010 11:03
    doctoranonymous: Getting ready for panel coming up. Are you ready #digpharm LOL
    6/30/2010 11:09

    unclebrendan: "Not an actual patient" runs counter to our charge for better transparency. There, I said it.
    #digpharm
    6/30/2010 11:11

    sevinfo: . @unclebrendan - seems transparent but not authentic - "not an actual patient" :-)
    #digpharm
    6/30/2010 11:19

    unclebrendan: Dave Gulezian, CEO of Viscira, showing off some nice interactive creative, reminds us
    that "Content is King" #digpharm
    6/30/2010 11:20

    sevinfo: Is content always king? @ccarfi challenged us last night to consider context, location,etc
    too #digpharm
    6/30/2010 11:21

    unclebrendan: @sevinfo good point! I'd say you need both for Trust though, and ultimately, that's what
    it's all about :) #digpharm
    6/30/2010 11:28

    philbaumann: Up now at #digpharm are my boys @Doctor_V & @doctoranonymous


    6/30/2010 11:37

    sevinfo: OK @Doctor_V and others to tell us about HCP marketers & drs #digpharm
    6/30/2010 11:39

    unclebrendan: Jay Appel from Amgen, looking sharp in an east-coast suit, is leading a panel with
    @doctoranonymous & others on social HCPs #digpharm
    6/30/2010 11:42

    philbaumann: A fund, smart medical blogger is @Doctor_V - you can read/subscribe to his blog at
    33charts.com #digpharm
    6/30/2010 11:44

    deansguide: RT @philbaumann: A fund, smart medical blogger is @Doctor_V - you can read/subscribe
    to his blog at 33charts.com #digpharm
    6/30/2010 11:46

    Digitas_Health: RT @unclebrendan: Dave Gulezian, CEO of Viscira, showing off some nice interactive
    creative, reminds us that "Content is King" #digpharm
    6/30/2010 11:47

    philbaumann: Does @Doctor_V engage with patients on public social media? No. Still he's figured out
    how to provide value. #digpharm
    6/30/2010 11:47

    Digitas_Health: RT @unclebrendan: Jay Appel from Amgen, looking sharp in an east-coast suit, is
    leading a panel with @doctoranonymous & others on social HCPs #digpharm
    6/30/2010 11:48

    sevinfo: social media doesn't fit physician workflow for most part #digpharm
    6/30/2010 11:50

    philbaumann: Concerns about Sermo: underwhelmed with community value provided. Success
    ingredients = Value + Convenience w/in MDs Workflow #digpharm
    6/30/2010 11:51

    sevinfo: social media will succeed with physicians when it really brings them value like Within3
    #digpharm
    6/30/2010 11:51

    erikpupo: RT @sevinfo: social media doesn't fit physician workflow for most part #digpharm
    6/30/2010 11:53

    mkmackey: Eavesdropping on a panel at #digpharm w/ medical bloggers @Doctor_V &


    @doctoranonymous
    6/30/2010 11:54

    JohnSharp: RT @unclebrendan: Lance Hill, Within3.com CEO - Facebook/Twitter unsafe for


    physicians. MDs afraid to have clinical discussions #digpharm
    6/30/2010 11:55

    sevinfo: Within3 and others getting closer to providing the value needed to make SM enticing
    #digpharm
    6/30/2010 11:56

    pharmaguy: @philbaumann R u saying docs hv concerns about Sermo? #digpharm


    6/30/2010 11:58

    pharmaguy: @sevinfo Maybe SM does not fit physician workflow, but what abt afterworkflow?
    #digpharm
    6/30/2010 12:04

    jeffrikas: RT @unclebrendan: Dave Gulezian, CEO of Viscira, showing off some nice interactive
    creative, reminds us that "Content is King" #digpharm
    6/30/2010 12:05

    philbaumann: Scott E. of Teva suggests that just building portals and expecting docs to just show up is
    a flawed approach. #digpharm
    6/30/2010 12:05

    pharmaguy: @sevinfo Is that ancedotal or based on some survey? #digpharm


    6/30/2010 12:11

    philbaumann: Information overload is a huge problem for docs - big need for curated information,
    according to @Doctor_V #digpharm
    6/30/2010 12:11

    odomlewis: RT @philbaumann: Information overload is a huge problem for docs - big need for
    curated information, according to @Doctor_V #digpharm
    6/30/2010 12:13

    simonslee: RT @PhilBaumann: Information overload is a huge problem for docs - big need for
    curated information, according to @Doctor_V #digpharm
    6/30/2010 12:13

    sevinfo: Curation will dominate next decade according to @Doctor_V ; dubious about value of
    proliferating mobile apps - info overload? #digpharm
    6/30/2010 12:13

    pharmaguy: @PhilBaumann "curated information." Hmmm... sounds like a medical journal editor or
    other big fan of peer review. #digpharm
    6/30/2010 12:14

    philbaumann: @pharmaguy Perhaps - but it may be in the form of a more rapid curation by a dedicated
    service offering focused content #digpharm
    6/30/2010 12:16

    pharmaguy: @philbaumann I think "rapid" and "curated" cannot co-exist. #digpharm


    6/30/2010 12:19

    philbaumann: @pharmaguy Yes they can. But you need brains for it. #digpharm
    6/30/2010 12:20

    healtheddigital: @philbaumann Curation the future not just 4 docs but 4 pts, Organized Wsdm et al
    #digpharm
    6/30/2010 12:20

    philbaumann: A shout-out for @shwen by @Doctor_V on model of interaction. #digpharm


    6/30/2010 12:21

    unclebrendan: @Doctor_V on the future of sales reps: human person-to-person contact is more
    important than ever. #digpharm
    6/30/2010 12:22

    ylavender: Game changing attitudinal shift: "if the news is important enough, it will find me".
    #digpharm
    6/30/2010 12:23

    Digitas_Health: RT @unclebrendan: @Doctor_V on the future of sales reps: human person-to-person


    contact is more important than ever. #digpharm
    6/30/2010 12:23

    Digitas_Health: RT @unclebrendan: RT @philbaumann: Information overload is a huge problem for docs


    - big need for curated information, according to @Doctor_V #digpharm
    6/30/2010 12:23

    pharmaguy: @unclebrendan But person-to-person realtime interaction is less of a fit for physician
    workflow than is SM! #digpharm
    6/30/2010 12:26

    pharmaguy: @philbaumann Curated medical information should be based on good science, which is a
    slow process. IMHO. #digpharm
    6/30/2010 12:30

    shwen: @PhilBaumann Uh oh - @Doctor_V is shouting at me at #digpharm ? Hopefully it's all


    good or am I in trouble? ;-)
    6/30/2010 12:32

    Betsy_RSHC: Not consistently, for sure. RT @pharmaguy: @philbaumann I think "rapid" and "curated"
    cannot co-exist. #digpharm
    6/30/2010 12:33

    sevinfo: EMR+yammer+medscape/epocrates+selected specific clinical news feeds would be


    @Doctor_V's workflow app #digpharm
    6/30/2010 12:33

    philbaumann: RT @sevinfo: EMR+yammer+medscape/epocrates+selected specific clinical news feeds


    would be @Doctor_V's workflow app #digpharm
    6/30/2010 12:34

    philbaumann: @shwen Its all good trouble ;) #digpharm


    6/30/2010 12:34

    philbaumann: @Betsy_RSHC It can be done - it's a matter of designing systems that take existing
    vetted info & delivering at right time. #digpharm
    6/30/2010 12:35

    SMCSF: Corrected hashtag: follow #digpharm for healthcare social media discussion
    6/30/2010 12:36

    alexdcRx: Corrected hashtag: follow #digpharm for healthcare social media discussion
    6/30/2010 12:36

    alexdc: Corrected hashtag: follow #digpharm for healthcare social media discussion
    6/30/2010 12:36

    Gingerpug9405: RT @alexdc: Corrected hashtag: follow #digpharm for healthcare social media discussion
    6/30/2010 12:37

    pharmaguy: @sevinfo This attitude re "curated info" doesn't fit fact that over 50% of docs use
    "uncurated" wikipedia for medical info. #digpharm
    6/30/2010 12:38

    MiamiJorge: RT @SMCSF: Corrected hashtag: follow #digpharm for healthcare social media
    discussion
    6/30/2010 12:39

    pharmaguy: @sevinfo Best give docs tools 2 filter "uncurated" SM info according to their needs. ie,
    follow trusted sources on Twitter. etc. #digpharm
    6/30/2010 12:44

    pharmaguy: @unclebrendan Iguess you just asked him, If @Doctor_V is monitoring this "uncurated"
    discussion via #digpharm!
    6/30/2010 12:47

    jbselz: RT @philbaumann: Information overload is a huge problem for docs - big need for
    curated information, according to @Doctor_V #digpharm
    6/30/2010 12:52

    jbselz: It doesn't work RT @philbaumann Scott E. suggests just building portals & expecting
    docs to just show up is a flawed approach. #digpharm
    6/30/2010 12:53

    leavittm: RT @philbaumann: Information overload is a huge problem for docs - big need for
    curated information, according to @Doctor_V #digpharm
    6/30/2010 12:54

    jbselz: SM fits both when used appropriately RT @pharmaguy @sevinfo Maybe SM does not fit
    physician workflow, but what abt afterworkflow? #digpharm
    6/30/2010 12:54

    Digitas_Health: RT @jbselz: SM fits both when used appropriately RT @pharmaguy @sevinfo Maybe SM
    does not fit physician workflow, but what abt afterworkflow? #digpharm
    6/30/2010 12:59
    TrpKristi: RT @simonslee: RT @PhilBaumann: Information overload is a huge problem for docs -
    big need for curated information, according to @Doctor_V #digpharm
    6/30/2010 13:07

    LauraN546: RT @unclebrendan: @Doctor_V on the future of sales reps: human person-to-person


    contact is more important than ever. #digpharm
    6/30/2010 13:21

    LauraN546: @philbaumann pleasure meeting you at #digpharm! Had to catch a plane. Hope to
    reconnect soon!
    6/30/2010 13:22

    MarkHarmel: GE ad was placed on all HuffPost "wellness" articles. The ad was attached to content
    when shared. http://bit.ly/dq5WXo #digpharm
    6/30/2010 13:50

    DaveNClarke: RT @unclebrendan: RT @philbaumann: Information overload is a huge problem for docs


    - big need for curated information, according to @Doctor_V #digpharm
    6/30/2010 13:55

    sevinfo: Sales reps & mktrs have to work together & listen to doc AND look at docs behavior -
    What do they do, not what they say #digpharm
    6/30/2010 14:44

    bobfine: RT @PhilBaumann: A fun, smart medical blogger is @Doctor_V - you can read/subscribe
    to his blog at 33charts.com #digpharm
    6/30/2010 14:48

    lawscomm: RT @bobfine: RT @PhilBaumann: A fun, smart medical blogger is @Doctor_V - you can
    read/subscribe to his blog at 33charts.com #digpharm
    6/30/2010 14:53

    nicoleljohnson: Biomarin Pharma words for leg/reg w/ re to sm: mutual trust, respect, goals, open
    discussion, collaborative...#digpharm
    6/30/2010 14:54

    sevinfo: Mutual trust between mktg & legal/reg needed to work thrU issues in creating disease
    community (Biomarin started site 5 yrs ago) #digpharm
    6/30/2010 14:55

    Jeff_Greene: This is 1 of my fave blogs: RT @bobfine @PhilBaumann: @Doctor_V - you can


    read/subscribe to his blog at 33charts.com #digpharm
    6/30/2010 14:56

    nicoleljohnson: Biomarin Pharma - 5-yr update in sm - on avg 1 AE per month #digpharm


    6/30/2010 14:56

    DaphneLeigh: Missed beginning of Biomarin prezo, but like hearing how marketing and reg/compliance
    can work together. #digpharm
    6/30/2010 14:57

    nicoleljohnson: Biomarin Pharm PKU.com - excellent/active discussion forum for orphan disease - ~50%
    of PKU patient community uses website #digpharm
    6/30/2010 14:58

    sevinfo: Biomarin - 50% of PKU patient community uses PKU.com #digpharm; happy with results
    and plan to maintain
    6/30/2010 14:59
    HealthIntel: Sandra Shipilberg of Biomarin Pharma explaining some fabulous SM programs they're
    doing. Smart and effective. #digpharm
    6/30/2010 14:59

    heldincontempt: Great! RT @nicoleljohnson: Biomarin Pharma words for leg/reg re:SM: mutual trust,
    respect, goals, open discussion, collaborative...#digpharm
    6/30/2010 14:59

    broadcrawford: RT @sevinfo: Within3 and others getting closer to providing the value needed to make
    SM enticing #digpharm
    6/30/2010 15:00

    broadcrawford: RT @sevinfo: social media will succeed with physicians when it really brings them value
    like Within3 #digpharm
    6/30/2010 15:01

    HealthIntel: Biomarin's Shipilberg says embrace your reg/legal folks; learn to trust one another and
    find solutions to SM challenges. #digpharm
    6/30/2010 15:01

    sevinfo: Biomarin monitors web site & FB pages daily for AEs #digpharm
    6/30/2010 15:02

    DaphneLeigh: BioMarin's Facebook fans offered insight about managing PKU. #digpharm
    6/30/2010 15:02

    nicoleljohnson: Two thumbs up to Sandra Shpilberg from Biomarin Pharma who is presenting "Using
    Social Media at a Small Pharma Company... #digpharm
    6/30/2010 15:04

    DaphneLeigh: Agree. RT @nicoleljohnson: Thumbs up to Biomarin Pharma presenting on "Using Social


    Media at a Small Pharma Company... #digpharm
    6/30/2010 15:05

    sevinfo: Biomarin found that FB fans responded positively to unbiased faces about PKU &
    consistently engaged in 2-way conversations #digpharm
    6/30/2010 15:06

    philbaumann: Biomarin strikes me as an example of why smaller companies are better positioned to be
    more supple than big companies. #digpharm
    6/30/2010 15:07

    sevinfo: Agree! nicoleljohnson Two thumbs to Biomarin Pharma who is presenting "Using Social
    Media at a Small Pharma Company... #digpharm
    6/30/2010 15:07

    DaphneLeigh: BioMarin went from unbranded, disease Facebook to branded Kuvan Facebook page.
    #digpharm
    6/30/2010 15:07

    HealthIntel: Congrats to Biomarin. Pharma take note... Social mktg CAN be done!!! #digpharm
    6/30/2010 15:08

    nicoleljohnson: Biomarin Pharma thinks of their PKU Twitter account as complimentary, not a stand-alone
    #digpharm
    6/30/2010 15:08
    DaphneLeigh: BioMarin SM presence has "softened" their image to patient community. #digpharm
    6/30/2010 15:11

    philbaumann: Biomarin's pretty much figured out the basic schema for doing SoMe in life sciences. A
    good role model. #digpharm
    6/30/2010 15:11

    nicoleljohnson: RT @DaphneLeigh: Patients with rare diseases *want* to engage with mfg of product and
    their peers, says BioMarin. #digpharm
    6/30/2010 15:11

    philbaumann: Biomarin doesn't delete negative comments. It posts & lets community converse.
    #digpharm
    6/30/2010 15:18

    JerardWhite: Ok #digpharm attendees, I'm signing up for Twitter and I'm in the *real* unconference at
    the bar! Join me!
    6/30/2010 17:12

    doctoranonymous: RT @JerardWhite: Ok #digpharm attendees, I'm signing up for Twitter and I'm in the
    *real* unconference at the bar! Join me!
    6/30/2010 17:17

    rawarrior: RT @PhilBaumann Biomarin doesn't delete negative comments. It posts & lets community
    converse. #digpharm // Reality is more effective anyway
    6/30/2010 17:24

    philbaumann: Check out @JerardWhite's picture taken by @MarkHarmel #digpharm -


    http://tweetphoto.com/30062287
    6/30/2010 17:30

    healtheddigital: RT @HealthIntel: Congrats to Biomarin. Pharma take note... Social mktg CAN be done!!!
    #digpharm
    6/30/2010 17:37

    doctoranonymous: RT @philbaumann: Check out @JerardWhite's picture taken by @MarkHarmel #digpharm


    - http://tweetphoto.com/30062287
    6/30/2010 17:41

    MarkHarmel: The #digpharm after party.


    6/30/2010 17:47

    DaphneLeigh: Fun group! RT @MarkHarmel: The #digpharm after party.

    6/30/2010 17:49

    mgroffburling: RT @broadcrawford: RT @sevinfo: social media will succeed with physicians when it
    really brings them value like Within3 #digpharm
    6/30/2010 19:11

    mgroffburling: RT @broadcrawford: RT @sevinfo: Within3 and others getting closer to providing the
    value needed to make SM enticing #digpharm
    6/30/2010 19:12

    mgroffburling: RT @philbaumann: Does @Doctor_V engage with patients on public social media? No.
    Still he's figured out how to provide value. #digpharm
    6/30/2010 19:14
    mgroffburling: RT @philbaumann: A fun, smart medical blogger is @Doctor_V - you can read/subscribe
    to his blog at 33charts.com #digpharm
    6/30/2010 19:15

    unclebrendan: In a cab heading home from the airport. This is much better than a red eye. Great
    meeting everyone at #digpharm!
    6/30/2010 20:43

    nicoleljohnson: @daphneleigh @philbaumann @sevinfo it was wonderful seeing you at #digpharm safe
    travels home & I look fwd to our tweets until next time!
    6/30/2010 20:44

    philbaumann: @nicoleljohnson Nice seeing you at #digpharm too!! Went so fast! We'll have to catch up
    on the East Coast sometime. Safe travels! :)
    6/30/2010 21:35

    philbaumann: @unclebrendan Great meeting you - safe travels, we'll talk soon! #digpharm
    6/30/2010 22:17

    philbaumann: @mgroffburling He's a smart one, that @Doctor_V - crazy too...but in a good way, of
    course ;) #digpharm
    6/30/2010 22:35

    You might also like