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DOI: 10.1002/cpp.2116
RESEARCH ARTICLE
1
Clinical Psychology Area, Universidad Rey
Juan Carlos, Madrid, Spain Providing care for a relative with dementia is considered to be a chronic stressor that has been
2
Department of Biological and Clinical linked to negative mental health consequences for caregivers. A theoretical model was developed
Psychology, Universidad Autónoma de Madrid, and tested to assess the degree to which ambivalence and guilt feelings contribute to caregivers'
Madrid, Spain
depressive symptomatology. Participants included 212 dementia family caregivers. In addition to
3
Department of Human Development, Cornell
ambivalence and guilt feelings, sociodemographic characteristics, behavioural and psychological
University, Ithaca, NY, USA
symptoms of dementia, and depressive symptomatology were assessed. Hypotheses derived
Correspondence
Andrés Losada Baltar, Facultad de Ciencias de from the stress and coping model were tested using path analysis. The analysed model showed
la Salud, Universidad Rey Juan Carlos, an excellent fit to the data. In total, 35% of the variance in depressive symptomatology was
Departamental II, Avda de Atenas s/n 28922 explained by the assessed variables. Although significant correlations were obtained between fre-
Alcorcón, Spain.
Email: andres.losada@urjc.es
quency and appraisal of behavioural and psychological symptoms of dementia and depression,
the obtained model suggests that this effect was mediated through ambivalence. In addition,
ambivalence had an indirect effect on depression. The association of ambivalence with depres-
Funding information
Spanish Ministry of Economy and Competi- sion was explained through feelings of guilt; that is, respondents who reported ambivalent feel-
tiveness, Grant/Award Number: PSI2015‐ ings were more likely to experience guilt, leading in turn to greater depressive symptomatology.
65152‐C2‐1‐R and PSI2012‐31293; U. S.
The findings suggest that dementia caregivers' ambivalence and guilt feelings are relevant for
National Institute on Aging, Grant/Award
Number: P30AG022845 understanding their depressive symptomatology. These factors should be addressed in psycho-
logical interventions with caregivers.
KEY W ORDS
Clin Psychol Psychother. 2017;1–6. wileyonlinelibrary.com/journal/cpp Copyright © 2017 John Wiley & Sons, Ltd. 1
2 LOSADA A. ET AL.
2002), and with psychological distress and mental, social, and physical
functioning among caregivers of cancer survivors (Spillers, Wellisch, Kim, Key Practitioner Message
Matthews, & Baker, 2008). Although research on guilt feelings among
dementia caregivers has increased in recent years (Feast et al., 2017; • Care‐recipients' disruptive behaviours increase
2016; Roach, Laidlaw, Gillanders, & Quinn, 2013; You & Tak, 2014), few • Having ambivalent feelings in turn leads to stronger guilt
studies have analysed potential predictors of guilt or the mechanisms feelings in caregivers.
through which guilt may affect caregiver distress. • This process appears to significantly contribute to
A possible source of guilt may be specific emotional experiences. In caregivers' depressive symptomatology.
this article, we examine the relationship between the experience of
ambivalence and guilt feelings. In the caregiving context, ambivalence
is defined as the simultaneous experience of positive and negative feel- healthcare centres in Madrid, Spain. In order to be eligible for participa-
ings toward the care recipient (Fingerman, Pitzer, Lefkowitz, Birditt, & tion in the study, individuals were required to meet several criteria in
Mroczek, 2008; Willson, Shuey, & Elder, 2003). Research has focused order to ensure that the caregiving role has been established: (a) iden-
almost exclusively on caregivers' negative feelings or (to a lesser extent) tify themselves as the principal person taking care of a relative diag-
positive feelings, rather than on co‐occurrence of both types (Cohen, nosed with dementia; (b) devote at least 1 hr a day to the care of the
Colantonio, & Vernich, 2002). However, it is not uncommon to find relative; and (c) have provided care for at least 3 months to that
caregivers who report experiencing positive and negative feelings relative.
simultaneously, an internal conflict that is typically perceived as aver- These criteria are similar to those used in other studies analysing
sive by the individual (Pillemer et al., 2007). Ambivalence is especially caregivers, such as those considered by Perlick, Hohenstein, Clarkin,
likely when disruptive behaviours by the person with dementia are fre- Kaczynski, and Rosenbheck (2005), who consider as primary caregivers
quent and stressful for the caregiver (Pillemer & Suitor, 2005). those who satisfy at least three of the following criteria: Is the spouse,
Although the existence of ambivalent feelings among caregivers parent, or spouse equivalent; has the most frequent contact with the
has been recognized (Shim, Barroso, & Davis, 2012), few studies have patient; helps to support the care‐recipient financially; has most fre-
explored this construct among caregivers. Further, most existing quently been a collateral in the care‐recipients' treatment; and is
research is qualitative (Harding & Higginson, 2001; Shim et al., 2012), contacted by treatment staff in case of emergency. All of the partici-
although several quantitative studies exist that have measured ambiv- pants gave their consent to participate in the study, which was
alence indirectly by assessing positive and negative feelings toward the approved by the Spanish Ministry of Economy and Competitiveness
care recipient separately, and then calculating an ambivalence score by and the Ethics Committee of the Universidad Rey Juan Carlos.
combining both dimensions (Iecovich, 2014; Willson et al., 2003).
Recently, Losada, Pillemer, Márquez‐González, Romero‐Moreno,
and Gallego‐Alberto (2016) developed and tested the Caregiving
2.2 | Variables and instruments
Ambivalence Scale. Using a sample of 401 dementia caregivers, the 2.2.1 | Sociodemographic variables
investigators found that ambivalent feelings (e.g., feeling both satisfac- Caregivers' gender, age, relationship to the care‐recipient, time since
tion and resentment due to caregiving) contributed significantly to beginning caregiving, and daily hours devoted to caregiving were
caregivers' depressive and anxious symptoms, controlling for other rel- assessed.
evant dimensions of stress and coping. However, their study did not
examine the specific mechanisms through which ambivalent feelings
2.2.2 | Disruptive behaviours
may contribute to caregivers' distress.
The frequency of occurrence of disruptive behaviours and the degree
The aim of this study was to analyse the role of ambivalent and guilt
to which these behaviours were rated as stressful by the caregivers
feelings in depressive symptomatology, using theoretical framework
were assessed through the 8‐item disruptive behaviours frequency
based on stress and coping model, The hypotheses were the following:
and reaction subscales of the Revised Memory and Behaviour Prob-
(a) Caring for a loved one with high disruptive behaviours will be associ-
lems Checklist (Teri et al., 1992). The internal consistency (Cronbach's
ated with a increased reporting of ambivalent feelings; (b) reporting
α) for the frequency and appraisal subscales in this sample was .67 for
simultaneous positive and negative feelings toward the care recipient will
each subscale.
be associated with increased feelings of guilt; and (c) guilt feelings will in
turn be associated with increased reports of depressive symptoms.
2.2.3 | Ambivalence
Caregivers' ambivalent feelings were assessed through the Caregiving
Ambivalence Scale (Losada et al., 2016). This 5‐item scale assesses
2 | METHODS
the degree to which caregivers' attitudes and feelings toward their rel-
atives are mixed or conflicted (e.g., “I have mixed feelings toward my
2.1 | Participants relative (tenderness‐rage; love‐hate, etc).”). The answers are rated on
In‐person interviews were conducted with 212 dementia family care- a Likert‐type scale that ranges from 0 (never) to 3 (always). The internal
givers. All respondents were recruited through social agencies and consistency (Cronbach's α) for this scale in this study was .87.
LOSADA A. ET AL. 3
2.2.4 | Guilt (41%) or a parent (49.1%). Participants were either taking care of a rel-
The Caregiver Guilt Questionnaire (Losada et al., 2010) was used to ative with Alzheimer disease (71.1%) or related disorder (29.9%) and
assess caregivers' feelings of guilt. It is a 22‐item scale (e.g., “I have felt had been providing care for a mean of 3.73 years (SD = 2.91), devoting
guilty about the way I've sometimes behaved with my relative”) with on average 13.19 daily hours to caregiving (SD = 8.30).
response options ranging from 0 (never) to 4 (always or almost always).
In this study, the internal consistency for this scale (Cronbach's α)
3.2 | Correlations
was .92.
The associations between the assessed variables are shown in Table 1.
As hypothesized, caregivers who reported higher frequency and reac-
2.2.5 | Depressive symptomatology
tion to disruptive behaviours reported higher ambivalent feelings
Caregivers' depressive symptoms were measured by the Center for
(Hypothesis 1), those who reported higher ambivalence scores also
Epidemiologic Studies—Depression Scale (Radloff, 1977). The Center
reported high guilt scores (Hypothesis 2), and high scores on ambiva-
for Epidemiologic Studies—Depression is a 20‐item scale that assesses
lence and guilt were associated with higher scores in depressive symp-
the frequency of depressive symptomatology during the past week
tomatology (Hypothesis 3). Other significant correlations were found
(e.g., “I felt that everything I did was an effort”). Response options range
between daily hours spent caring and frequency and reaction to dis-
from 0 (rarely or none of the time) to 3 (most or all of the time). The internal
ruptive behaviours and guilt and depressive symptomatology. In addi-
consistency (Cronbach's α) for this scale in this study was .89.
tion, being younger and caring for parents were associated with
higher ambivalent feelings and guilt, and female caregivers showed
2.3 | Data analyses higher scores on ambivalent feelings and depressive symptomatology.
TABLE 1 Correlation matrix and means, standard deviations, and ranges of the assessed variables
1 2 3 4 5 6 7 8 9 10
1—Gender (1 = female)
2—Caregiver age −.19**
3—Caring for parents (1 = yes) .19** −.65**
4—Time since being a caregiver .01 .20** −.15*
5—Daily hours caring −.04 .45** −.38** .00
6—Frequency disruptive behaviours .17* −.06 .08 .31** −.04
7—Reaction to disruptive behaviours .17* −.09 .14* .20** −.07 .83**
8—Guilt .07 −.27** .33** −.02 −.18* .25** .29**
9—Ambivalent feelings .18** −.15* .15* −.01 −.07 .32** .43** .62**
10—Depressive symptomatology .29** .13 −.05 .00 .29** .24** .23** .32** .30**
Mean 61.40 3.73 13.19 6.97 5.51 25.05 4.83 21.63
SD 14.36 2.91 8.30 5.52 5.16 14.17 3.51 12.20
Range 21–88 0.3–20 1–24 0–27 0–25 0–65 0–15 1–48
*p < .05;
**p < .01.
These results have several implications for practice. Of particular symptomatology supports a potential etiological pathway for the relation-
note is the finding that care recipients' disruptive behaviours are associ- ship between these variables and depression. The results suggest that
ated with caregivers' ambivalent feelings. Although most caregivers will- ambivalence and guilt feelings are relevant variables for understanding
ingly provide care to a loved one, the occurrence of disruptive behaviours caregivers' distress and may be important targets for interventions aimed
may also generate negative feelings such as rejection, shame, or anger. at helping caregivers to cope with caring for a relative with dementia.
Such feelings are uncomfortable and distressing for caregivers. However,
they typically emerge that in the context of a close relationship, positive ACKNOWLEDGEMENTS
affect and love toward the person with dementia are also present. The We thank all the caregivers for their participation in the study and also
co‐occurrence of negative feelings toward the care recipient because the following centres for collaborating with us in the project: Centros
of these disruptive behaviours and the positive feelings associated with de día SARquavitae, Fundación María Wolff, Centro de Salud General
long‐standing bonds and attachment produce the experience of ambiva- Ricardos, Centro de Salud García Noblejas, Centro de Salud Benita
lence. In turn, caregivers experience guilt about the experience of such de Ávila, Centro de Salud Vicente Muzas, Centro Reina Sofía de Cruz
mixed (rather than positive) feelings. Roja, Unidad de Memoria de Cantoblanco, Asociación de Familiares
The inclusion of strategies for addressing and managing ambiva- de Alzheimer de Alcorcón, and Centro de Psicología Aplicada de la
lence and guilt feelings in interventions for caregivers may increase Universidad Autónoma de Madrid.
the effects of available interventions for reducing caregivers' levels of
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